Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. Disorder: The Rare Disease Film Festival strives to eventually host a film about every one of the nearly 7,000 rare…
My name is Michael Morale. As director of multichannel content for BioNews Services, my job is to bring engaging multimedia content to all of our rare disease communities. I would like to introduce some of the resources available to our Pulmonary Fibrosis News forum members, as well…
Editor’s note: Brad Dell, the head of columns for BioNews Services, wrote this column. When I walked into Kim Fredrickson’s room in the intensive care unit (ICU), my emotions ripped me this way and that — grief, relief, anxiety, joy — all fluctuating and overwhelming. Once Kim smiled at…
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