How much of a powerhouse in the world of rare disease medicine do you have to be to effect change?…
Articles by Samuel Kirton
Have you ever experienced a period in your life when nothing seemed to go right? While that may seem an…
July is a month of celebration at our house. Though it begins with the Fourth of July, my personal “Independence…
Adversity is something rare disease patients face on a regular basis. It can take many forms, but it often involves…
What choices do you have when you have idiopathic pulmonary fibrosis (IPF) and lung transplant isn’t an option? I’ve been told by more…
The sound of overhead explosions and bright flashes of light caused by fireworks. The sound of squealing tires followed by…
The calendar of any rare disease patient is a marvel, with its complexity and efficiency. I’ve become both a master…
My name is Sam, and I read a lot. I enjoy reading. I’m not asking for help or seeking an…
Have you ever tried to explain to someone who has never experienced a rare disease how patients can develop lasting…
A pulmonary fibrosis journey is marked by many firsts, especially in relation to medical tests. Prior to my…