Living with IPF — a column by Charlene Marshall

Charlene is a fiercely independent 30-something year-old who can’t sit still. She loves coffee, wine tasting, playing with her dog, and spending time on the beach with her family. She’s a lover of all things travel, and never passes up an opportunity for a dip in the ocean! A proud Canadian, Charlene was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016 after 13 months of investigation into sudden shortness of breath, a chronic cough, and unusual fatigue. IPF has forced her to slow down, but she’s slowly learning the value of quality versus quantity in everything she does.

What I Want My New Pulmonologist to Know About Me

A strong relationship with a medical specialist can make a world of difference. As a young adult living with idiopathic pulmonary fibrosis (IPF), a debilitating and life-threatening lung disease, I have various specialists, but the one I value most is my pulmonologist. Before my diagnosis in 2016, I bounced…

Do These Symptoms Mean My Disease Is Worsening?

Living with a chronic illness is not for the faint of heart. In addition to the physical and emotional aspects of having a life-threatening lung disease like idiopathic pulmonary fibrosis (IPF), there are also many mental challenges. As patients, we’re often forced to face our fears, especially during acute…

Are Healthy Young Adults as Tired as I Am?

“I’m so busy” feels like it’s now a common response to the question, “How are you?” It’s like being busy is glorified or worn as a badge of honor among many of us, myself included. Living with idiopathic pulmonary fibrosis (IPF), a life-threatening and debilitating lung disease, has forced…

How to Help When PF-related Trauma Shows Up Unexpectedly

It’s hard to forget traumatic events. Even if we’re not directly involved, these moments often become ingrained in our psyche. When we face trauma firsthand, we tend to remember many of the sensory experiences connected to the event. My most traumatic experience was being intubated after an exacerbation…

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