Make Every Breath Count – a Column by Samuel Kirton

A Friend Gets an IPF Diagnosis, Then Sees It Taken Away

“While walking on the beach yesterday, I realized how I’m feeling about PF, in general, is like the tide. There are times like now that I’m riding the high tide, full of energy about taking on PF activities (hosting PF get-togethers, participating in fundraising walks). Then the water is gone,…

Being Idiopathic: Solving the Mystery of My Diagnosis

I’ve spent much of my working life conducting investigations. As a special agent for the Air Force Office of Special Investigations and in a second career providing security and investigative services under contract to the federal government, the cases all had similar objectives. Simply stated, any investigation needs to answer…

Remembering Those PF Warriors Who Have Gone Before Us

One of the more difficult parts of my journey has been remembering those I’ve met or learned of who’ve passed away from pulmonary fibrosis (PF). There are so many. It’s why we must all move forward in pursuit of treatments and a cure. The pulmonary fibrosis community must…

When Pictures Really Are Worth 1,000 Words

During my pulmonary fibrosis journey, I learned that one of the best things I could do for myself was to become an active voice on my care team. As a patient diagnosed with idiopathic pulmonary fibrosis (IPF) more than five years ago, I wanted to know more about this…

To All Front-line Healthcare Workers: Thank You

When I see an adult acting out in public, I find it annoying. If a front-line healthcare worker asks you to properly wear a mask in a clinical setting, please adjust your mask. Complaining about the rules and overreach of the U.S. Centers for Disease Control and Prevention (CDC)…

How I’ve Prepared Myself for the End of Life

The day you’re diagnosed with a chronic illness is generally a day you won’t forget. The words from my doctor, Steven Nathan, made sense in the moment. They also became a collection of sound bites. They fall into three distinct categories: 1) you have, 2) you can expect, and…

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