Frequent appointments and testing are part of life with idiopathic pulmonary fibrosis (IPF). I’ve been living with IPF for eight years now, but the number of those appointments and tests can still overwhelm me, especially as I’m a young adult trying to prioritize my career. These visits…
Columns
When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, there didn’t seem to be as much chaos in the world as there is today. Perhaps the drama seemed more distant, or maybe I was just completely engaged in learning about my disease. Today, every…
I was recently asked when I stopped working and how I knew it was time. First, let me tell you: It wasn’t an easy decision. My idiopathic pulmonary fibrosis (IPF) diagnosis came on Jan. 31, 2017. At the time I was the senior vice president for a U.S.
I do not typically use my columns as a platform to complain about my idiopathic pulmonary fibrosis (IPF). Usually, I try to inform or inspire others; however, that’s not always possible with this cruel and unforgiving disease. I was diagnosed with IPF in 2016 and have been…
At the end of this week, I will complete another trip around the sun. This seemed like an appropriate time to provide you with updates on several columns I have shared in the past year. When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, the…
When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, the disease was a mystery to me. I’ve shared before that when my wife, Susan, and I left the clinic following my diagnosis, we began to search for information from the parking garage. That thirst for…
Living with pulmonary fibrosis is already a daunting challenge, but when coupled with a sleep disorder like sleep apnea, the burden becomes even heavier. Sleep apnea, a condition in which breathing repeatedly stops and starts during sleep, can significantly impact both sleep quality and overall health. For…
Buckle up. The past three weeks have been an emotional roller coaster for me. On a scale of -10 to 10, I’ve hit both extremes. I’m no stranger to emotion; some would say I wear my heart on my sleeve. During my journey I’ve had some huge emotional ups and…
The best-laid plans of mice and men often go awry. That line is adapted from a 1785 poem by Robert Burns titled “To a Mouse.” I had an entire month of columns planned for this Pulmonary Fibrosis Awareness Month, but that plan went awry. When I wrote…
My name is Sam. I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, and I hate this disease. My life was extended by a bilateral lung transplant in July 2021, thanks to an unknown donor who gave me a gift for which the value cannot…
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Recent Posts
- Researchers ID 4 gene biomarkers that could help in early IPF diagnosis January 28, 2026
- How the PFF’s 5-year plan seeks to expand access to expert care January 27, 2026
- Inhaled IPF therapy LTI-03 awarded orphan drug status in Europe January 21, 2026
- Artificial intelligence has a role in medicine, and in my PF care January 20, 2026
- Starting the year with a vision of wellness and a plan to follow through January 15, 2026
