Today is traditionally a day for trick-or-treating, haunted houses, pumpkin patches, hay rides, and of course, pumpkin “chunkin’”. I have always enjoyed Halloween, the scariest day of the year for many. I mentioned last week that my wife, Susan, and I host a Halloween costume party each year. Costumed partygoers and…
The pulmonary fibrosis (PF) community is not a stranger to stress. Regardless of your role, whether as a patient, caregiver, or transplant recipient, you’ve likely experienced it. The stress could be white coat syndrome or come from a test, procedure, or the many unknowns associated with living…
Living with a chronic illness like idiopathic pulmonary fibrosis (IPF) is a multifaceted endeavor. It’s hard to fully describe just how many aspects of life the disease affects. Despite writing about it for seven years, there’s always something new I want to share with this community, because…
Have you ever had the nagging feeling that a gray cloud was hanging over your head? For the past three years and 10 months, I’ve felt such a cloud. It comes from being labeled and stigmatized for my disability. Stigma can be described as a deeply discrediting attribute that…
In a single month, I’ve had three vaccinations, three medical procedures requiring anesthesia, two lab tests, one dental appointment, one pentamidine treatment, one appointment at the pulmonary clinic, and one pulmonary function test. As I’ve noted before, life after lung transplant is busy with medical surveillance. I…
Amy Silverstein’s second memoir, “My Glory Was I Had Such Friends” (2017), left a lasting impression on me. It wasn’t just because of the way Silverstein’s devoted friends attended to her while she awaited a second heart transplant, or even how that story mirrored…
“Hello darkness, my old friend/ I’ve come to talk with you again/ Because a vision softly creeping/ Left its seeds while I was sleeping/ And the vision that was planted in my brain/ Still remains/ Within the sound of silence.” Those words are from the song “The Sound of…
Today, I’m wrapping up another trip around the sun. On Oct. 4, 1957, the day I was born, the former Soviet Union launched Sputnik 1, Earth’s first artificial satellite. I’ve often wondered if there’s any relationship between my birthday and my love of space. Astronomy was my science during my…
Have you ever read a book that totally resonated with you? One that reflects who you are and enables you to see yourself in the words? I love to read a variety of genres but tend to lean toward self-improvement, technical publications, and real-life stories. A longtime friend of mine, following…
When I was diagnosed with idiopathic pulmonary fibrosis in January 2017, I began to tackle the steep learning curve almost immediately. I may never reach the summit, but that doesn’t mean I’ve given up. There is always something to learn, and I acquire new knowledge on a regular basis.
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