Ofev

[Paul B ~ Lakeland]

Hey Mack,

I’ve been on 150mg twice / day for 2.5 years.

No major problems, mostly diarrheal issues, which can be managed with diet.

Just saw pulmonologist today, she said my lungs are damaged but stable.

Good luck. Paul B

😖 🍌🍞 😉

[frog]

I took 150 for over 6 months and had diarrhea since I take 100 and don’t have diarrhea that bad. For cough I take 400 mg Guaifenesin twice a day and it really helps

[Mack]

Thanks for your reply !

[jpp]

I was diagnosed in March of this year with IPF after coming down with Pneumonia. I had to switch doctors because the first one only wanted to run test after test trying to make money off my insurance. The second doctor was very good. He prescribed Ofev 150 mg. At first, I was experiencing a slight case of Diarrhea and he wanted to reduce my dosage to 100mg but I told him I didn’t want to do that so he prescribed Loperamide for diarrhea which I take occasionally and it works fine. In addition to Ofev, I take Zinc and several vitamins to boost my immune system. I’m also taking a controversial drug called Fenbendazole. It was taken by a cancer patient who’s cancer went into remission and a number of IPF patients are trying it. I don’t know if it will help but at 77 years old I’m willing to try it.

My doctor put me in contact with a group called “Open Doors” and I’m getting my Ofev from them. They will charge you anywhere from 0 up according to your income. I will go back in January to have another breathing test done, hopefully, it will result in a good diagnosis. Good luck!

[Rex]

I have been on 150 mg OFEV since March 2020 ( what I started with).

Noticeable side effect is diarrhea managed by diet and medication.