Pulmonary Fibrosis News Forums Forums Treatments and Science Anyone on Mycophenolate Mofetil (CellCept, Myfortic Reply To: Anyone on Mycophenolate Mofetil (CellCept, Myfortic

  • SallyB

    Member
    April 14, 2025 at 3:17 pm

    One thing to clarify: taking Ofev does not replace mycophenolate (CellCept), the immunosuppressant. It is the primary med for us – got to get the immune system tamped down. Ofev is different – it isn’t an immunosuppressant, it’s an anti-fibrotic. It’s used to slow the progression of fibrosis, pretty successfully I believe. Even with the immune system suppressed, unfortunately some fibrosis keeps occurring. So, using both mycophenolate/CellCept and Ofev is considered the current standard. (I am not a physician but am a fellow patient who does a lot of research and learns from my own experience.) There is a new anti- fibrotic supposedly coming out soon, so real progress is being made in battling our disease.