Log In or Register to Join The Conversation!
Viewing 3 reply threads
  • Author
    Posts
    • #19364
      Mark Koziol
      Keymaster

      As I approach the upcoming week I am experiencing some anxiety. I have my 3 ½ year checkup with my transplant doctor and team. So far, I have completed my labs and chest x-ray, the only remaining test is the dreaded pulmonary function test (PFT). All tests have come back normal, and I am happy with my tacrolimus level, which is at the required trough stated by my doctor.  I know this makes her happy, which in turn makes me happy. My chest x-ray was also exceptional! Now, I have to worry about completing my PFT’s. These tests I believe are exhausting for people with healthy lungs, let alone someone who suffers from a chronic lung condition like pulmonary fibrosis (PF).

      My transplant team would like for to me to complete my PFT’s twice a day. Truthfully, I have not done these twice a day for quite some time. I have two hand-held, computerized spirometers which are both tricky to use but I do prefer one over the other. The latest one I bought was a waste of money. The numbers are way off and the device is finicky to use. The one I use regularly has a woman’s voice, she is annoying, especially when I complete the test improperly and have to repeat it. Being the 51 year old immature man I am; I call her names. She never talks back though.

      Kidding aside, PFT’s are the initial tool used for the diagnosis of chronic rejection and aspergillosis. A significant drop will initiate further testing to diagnose what is causing the drop. I love to have improvements but I am at the stage now where I am almost at my plateau. My improvements are minuscule at best. My goal is to hit 80% on my forced expiratory volume (FEV) score. I am at 77% and hope I can hit this milestone. I work hard and hope someday it happens. As the recipient of a single lung transplant, I am working with one lung. I understand there are some limitations but I have adjusted my training to compensate. I get winded easier than a double lung recipient and also monitor my oxygen saturation when I work out. When walking for extended periods of time my saturation hovers around 93%.

      The forced vital capacity (FVC) is also measured during my quarterly assessment. The FVC measures the total amount of air exhaled from the lungs after taking the deepest breath possible. I would love to improve my FVC score as well! I have not been tested for any other PFT related tests since my initial evaluation for transplant. My doctor told me that other tests are not necessary until there is a problem and all the information she needs, she receives in the FVC and FEV reports.

      Please share your experience with PFT’s.

      How do you feel after you complete the tests?

      Do you wish there was another method to measure your lung function?

    • #19399
      Marianne
      Participant

      I have only done these tests one time while undergoing tests.  I did so bad they made me redo some of the tests.  Pulmonary doctor at the time told me I only scored 50%.   I did not like the tests.  They told me 90 year old did well on the tests.  Hope I don’t have to do these tests very often, but have a feeling they might be every 3 months after going on meds for IPF.  Yes, I wish there was another method to measure lung function.

      Marianne

    • #19406
      Mark Koziol
      Keymaster

      Hello Marianne, thanks for reading and commenting. Tell your doctor to keep his comparisons to himself. Yes, you will probably be doing these every 3 months. They are not fun and are totally exhausting. Try not to eat before you go, I feel we do better on an empty stomach. Don’t worry you are going to be alright. Don’t stress about this. You were probably under the weather the first time you did it. Mark

    • #19407
      Mark Koziol
      Keymaster

      Hello Marianne, thanks for reading and commenting. Tell your doctor to keep his comparisons to himself. Yes, you will probably be doing these every 3 months. They are not fun and are totally exhausting. Try not to eat before you go, I feel we do better on an empty stomach. Don’t worry you are going to be alright. Don’t stress about this. You were probably under the weather the first time you did it. Mark

Viewing 3 reply threads
  • You must be logged in to reply to this topic.
Copyright © 2017-2020 All rights reserved.

©2020 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account