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  • Does educating medical professionals frustrate you?

    Posted by Charlene on October 1, 2025 at 6:00 pm

    On September 5th, I had an important test at one of the big urban hospitals near where I live. The test was unrelated to IPF but rather following a surgery that didn’t go well (because my lungs couldn’t handle sedation, but I digress…). It was a follow-up to nerve damage I was experiencing.

    The appointment went very well overall. However, I stayed while the specialist dictated a note summarizing my appointment, his findings, and recommended next steps using AI. When he got to the medical history section, he referenced my diagnosis as asthma, and I had to intervene. He told me he was unfamiliar with IPF and needed me to educate him on it before he could speak to the disease in the medical history section of my note. I was so frustrated because had I not been privy to that dictation, he likely would have left my diagnosis as asthma, which is completely different than IPF. I also didn’t feel as though it was my job to educate him on my disease, but because it was important to my file, I did.

    Does educating medical professionals frustrate you? If yes, how do you navigate this, or if no, do you see it as an opportunity to help others understand?

    I don’t think there’s any correct answer, but I’m curious to hear from others.

    replied 1 week, 3 days ago 1 Member · 0 Replies
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