• Posted by Community Member on May 2, 2025 at 9:24 am

    Mental health is an important aspect of any rare disease journey. Being aware of the state of your mental health can be difficult. 

    Can you share any tips for how you stay aware of your mental health status? 

    Let me start with one. Pay attention to those around you who may see a change in your mood or appearance. They may even comment, “You seem depressed,” or something similar. Their observations are important.



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