• Not taking antifibrosis medications

    Posted by RobJ on September 28, 2025 at 10:18 am

    I would like to begin a discussion with patients who have been diagnosed with IPF. I have been diagnosed with that disease, but the side effects of the 2 available anti-fibrotic medications have led me to delay taking either medication. I would be interested in discussing your decision and if you are aware that your condition has worsened and in how much time. Currently I only use supplemental oxygen for exercise. I do not have a cough, but have some mucous in back of my throat. My breathing is about the same since I was diagnosed in January 2025. There is some shortness of breath , but my oxygen levels remain about 93-97 .

    RobJ replied 1 day, 4 hours ago 1 Member · 0 Replies
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