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  • Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

    Posted by pulmonary-fibrosis-news-moderator on February 27, 2020 at 7:06 am

    Charlene Marshall never expected to be an advocate for any type of rare disease, especially one that she has. However, following her own diagnosis of IPF nearly four years ago, Charlene knew she had two choices. She could live miserably and be angry at the fact that she was diagnosed with a life-threatening lung disease, or she could help raise awareness for IPF. While not always easy, Charlene chose the latter, which is why Rare Disease Day is so important to her.

    This flash briefing highlights the many Rare Disease Day events taking place around the world, and talks a little bit about it’s history as well. As a patient living with IPF/PF, which is considered a rare disease, how do you plan on celebrating Rare Disease Day 2020? 

     

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