I am in a similar situation. 41 days ago, I was walking around, drove 2 hours round trip to take my mother to the doctor. The next day I had an acute exacerbation of my IPF. Prior I had oxygen but did not need it. By the time the ambulance got to my house my 02 sats were 37%. I was taken to the hospital. 28 days later I was transported 8 hours… Read more

Hi Joe! Thanks for sharing your journey and so sorry for your loss of your good friend.

I can’t speak to OFEV, but I have been on Esbriet for 1 year and 9 months and have never had any side effects. I always eat something before taking it (if only a graham cracker or something light), and to date have never had nausea. I wear light weight long… Read more

Charlene: I will certainly let you know if I see anything else from Pliant!

Pliant Therapeutics (leaders of the original study along with the University of California) are continuing a trial with EGCG.

Thank you for posting your experience. I am curious who does comprehensive air quality tests and what results you recieved.

Ron: These are incredible and encouraging  results! Congratulations!!! Looking forward to hearing the report from your CT scan! Blessings!

https://www.prnewswire.com/news-releases/promedior-announces-positive-long-term-safety-and-efficacy-data-from-open-label-extension-study-of-prm-151-in-idiopathic-pulmonary-fibrosis-300853200.html

 

Lou: Good to hear from you again! I started taking the EGCG Soon after the article came out about 5 months ago. I have not have any CT scans nor other tests since before then so I have no way to know if it is helping. Likewise, I have no way to know if taking Esbriet is helping me. In the aggregate, Esbriet is supposed to slow progression.… Read more

Gregory, Don, Judy, Charles and all others on this EGCG/IPF journey: I do not expect that any of us will receive much encouragement from the established medical community because of liability issues and the scarcity of clinical studies regarding these supplements. We are, in a real sense, on our own for this part of the journey. Heck, no-one… Read more

The study states a 600mg dose daily for 14 days. I read that as taken 1 time daily. Another study I read on the bioavailability of EGCG showed highest availability was achieved when taken without food (ie, first thing in the morning after fasting at night. I take 600mg of TEAVIGO each morning along with 325mg of Curcumin. I also take the Curcumin at night.

Lou… welcome back! I have no news to report other than I am still taking 600 mg of EGCG daily (all at once on an empty stomach with water only. I wait 2 hours before any other meds or food.) No weight loss to date. No negative side effects.

Rebecca…that is incredible! How much Curcumin does he take, and with or without food?

Hi Rebecca! So sorry for the frustrating Dr. appointment. I was also eagerly awaiting your report on your husbands visit! I don’t go back for any significant tests until Mid October, so probably won’t have anything quantitative to report for awhile. The good thing about that is it will reflect 4+ months of taking EGCG. I will have a liver… Read more

Hi Lou! Great to hear you are tolerating the EGCG so far. I too am taking Esbriet and I do that with food about 1-2 hours after taking the EGCG with no food. The issue of bioavailability is interesting to me. I feel somewhat like a blind man feeling my way through a maze of research and various information channels. After reading your post,… Read more

Hi Rebecca! Your husband seems to have had great results with the Esbriet so far. I hope he and the rest of us see positive benefits from the EGCG as well!

Hi Jerry and thanks! The articles I have read on weight loss and EGCG seem to indicate that some weight loss can occur but when combined with intake of higher levels of caffeine. I do drink one cup of coffee most days, but I think higher levels than that are used to facilitate weight loss and even then weight loss is not always an out come… Read more

Hi Janice! I bought Healthy Origins brand Teavigo (Caffeine Free) . It is available at both Swansonvitamins.com and Amazon.com. Hope this helps! Kindest Regards, Dave

I have been taking 600 mg of Green Tea Extract for 1 week (Decaffeinated, 94% EGCG). I have not lost any weight. After 1 full week, the quantitative results are:

Oxygen Saturation increased from Average 94% to Average 96%.

Measured by home pulse oximeter.

The only thing that has changed in my routine is that I began taking the Green… Read more

Hi Charlene!

Always glad to share. I suspect I won’t have much to report as far as any results for a few months. I did not expect any immediate noticeable difference but hope to be able to see some quantifiable results via a breathing test, blood labs, and/ or CT scan in 3-4 months. Will continue to read and research in the meantime. Blessings!

Bioavailability of EGCG:

Just received my order of EGCG and immediately took two capsules (150mg ea). Went and read some more research and discovered that optimum bioavailability of EGCG is achieved by taking it without food and only water. Bioavailability is important because it determines how much of the substance gets to the intended… Read more

Penny: Our situations are very similar… I ordered the same product as you and plan on the same dosage. I started Esbriet as well ( 9 weeks ago). I read about the rash side effect but have not had that. I have now read many scientific studies on EGCG for a variety of health applications and find it encouraging that there has been so much… Read more

Hi Rebecca! Praying for good results for your husband. I am hoping to see some results over time, but I realize this did not occur over night and results may take a while to begin to surface. Having said that, I am moving forward believing that in sticking with it I am doing something good and positive for my health that could get me through… Read more

1: The March 3, 2020 issue of US News and World Report picked up and highlighted the New England Journal of Medicine article we have been discussing in this thread: https://www.usnews.com/news/health-news/articles/2020-03-11/could-green-tea-extract-help-fight-pulmonary-fibrosis

… Read more

I just started on Esbriet a month ago. I have not yet begun losing weight but I am interested to hear if anyone is taking green tea extract as a supplement and is having any noticeable results. Seems to good to be true!