IPF focused on airways
I recently received the results of my lung biopsy, “Airway centered interstitial fibrosis with extensive bronchiolization and thickening of blood vessels” and will be starting Ofev soon. Concern about my lungs go back about 2 1/2 years when I had a major respiratory viral infection that took many weeks to resolve. CT scans showed ground glass opacities that didn’t resolve and a bronchoscopy was inconclusive so eventually we completed a surgical biopsy. The pandemic and other health issues slowed things down a bit. Fortunately I feel great today with minimal if any lung impact but it has been an interesting 12 months. About a year ago I was diagnosed with prostate cancer that was treated with radiation therapy this summer/fall. Before I started treatment, I ended up in the hospital for 11 days with a flareup of catastrophic anti-phospholipid syndrome, a blood disorder that in some rare cases can lead to simultaneous clotting and bleeding. It is an auto immune related disorder. There was major inflammation of my lungs during that episode but that has mostly resolved.
I’m wondering if anyone else has received a diagnosis of airway scarring that has not been linked to occupational or environmental-based exposure? Although I don’t expect to find any issues, I recently had a comprehensive series of air quality tests done at my home, where I have worked for most of the past year.
Other than a few potential very short term occupational exposures to silica, possibly asbestos, etc I have never worked in an environment where I have been subjected to chronic conditions that would typically cause this type of scarring. based on what I read, the viral infection by itself may explain the scarring found in the biopsy.
I realize that I may never know the cause of my scarring and the progression seems to be slow.
Any input that you may have would be greatly appreciated. Thank you
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