- Short Bio
Fun Fact: My mother is a Huge Stevie Wonder fan and named after his daughter. She mispronounced the name and added an extra “I” though..
I love mermaids and yoga.
- Type of Diagnosis
- Supplemental Oxygen
- Best advice for PF symptom management
I was dx in 2015 as ILD. Likely Hypersensitivity Pneumonitis. In December after my PFT and CT scan showed some decline worse than it has been and my Diffusion at 33% I was dx with IPF and referred up to the UWMC, ILD Clinic. My new Dr. strongly believes that it is not IPF but rather is auto immune related (likely mixed connective tissue disorder) Non Specific Interstitial Pneumonitis (NSIP). So it appears my dx is a working dx. So far my best advice for management is attitude. Do your very best every day to live your life and remain strong and positive. Remember we are so much more than our lungs!!!
- Are you currently taking an anti-fibrotic medication?