Forum Replies Created

  • Linda

    Member
    May 28, 2021 at 9:40 am in reply to: Started Ofev…one week in now

    I’m so glad to hear that you are tolerating OFEV well! I just received my first bottle yesterday. So far I haven’t taken any; just fearing the side affects I guess. I have to go to a family wedding this weekend so think I’ll wait til Monday when I can stay at home. I’m sure the bride will appreciate no puking in the pews! 🙂

  • Linda

    Member
    May 28, 2021 at 9:26 am in reply to: Families of IPF/PF patients getting tested

    Yes, it’s hereditary in my family too.  I really had no symptoms except a dry cough which my Dr at the time didn’t think it was anything to worry about.  I changed Drs to one whose practice was mostly patients over 65.  He heard me cough just one time and immediately sent me for some tests which confirmed I have IPF.  I can’t tell you how many Docs I mentioned my cough to and none thought it was worth checking out.  I then remembered that my sister had a similar cough. Her Doc tested her and found she also had IPF.  🙁  We both grew up with an incredible amount of smoking in the home, not sure if that’s a factor.  Sadly, both my parents died young from lung cancer.  Guess they just didn’t know how dangerous smoking was til much later.  I don’t know if there’s any connection. between smoking and IPF but I wouldn’t be surprised if there was.