Forum Replies Created

  • I recently started taking the statin Crestor. How do I find out if it is the good or bad kind for ipf?

  • Betty Edwards

    Member
    June 20, 2019 at 7:18 pm in reply to: Homeopathy Treatment of IPF

    Michael,

    Not everyone has side effects from Esbriet. I’ve been on it for a couple of years with virtually no side effects. Give it a try before you decide.

    Betty

  • I’m in the middle of my pulmonary rehab. Twice a week for 13 weeks. I find it helpful. I’m not on oxygen at home but my levels drop to the low 80s quite rapidly if I walk faster than 2 mph or go up hill. They put me on 2L of ox while I’m on the treadmill and I can walk 3mph without dropping below 89.

    Basically PR is improving my physical fitness and allows me to test my limits and fin out what oxygen can do for me. I’m hoping to build up more exercise tolerance without oxygen. Not sure if that’s possible.

    Also going to an ipf support group once a month and find that very helpful. This is such a confusing disease.

    If my oxygen levels drop to low 80s for a couple of hours each day, is that really a problem that can cause hypertension? There does not appear to be a clear answer.

    Betty

  • Betty Edwards

    Member
    April 18, 2019 at 4:21 pm in reply to: Laser Therapy Part III

    Many of the Laser Therapy posts on this forum talk about a cold laser.  I talked to a Tucson Chiropractor named Dr Parks who has a K 4 laser. He says it is a hot laser that creates heat. He also says there is no Class 4 laser by K that is cold.  Dr Hall, can you please clarify.  I don’t want to start treatment with the wrong kind of laser.