[Bill Carner]

Both the Galactic and Galapagos studies were terminated suddenly in February. I haven’t f0und the whole story but it seems they weren’t effective and could be doing some harm. I was in the Galapagos study it seemed clear that I was getting the placebo.

I was on Esbriet for 5 or 6 months. hated it: insomnia, fatigue, depression. I had been leery of Ofev because of diarrhea being a side effect, but when I cut back to one 801 mg tablet it didn’t get much if any better.  My pulmonologist told me I was getting all of the side effects and none of the benefits of Esbriet and switched me to Ofev, when I asked about diarrhea she said she’d give some meimmodium and guess what, no diarrhea! even with no immodium, and my partner said I was back to my old, fun self.