[Stuart]

Hi

 

I have been following the green tea thread for a while and have been surprised that it went so quiet towards the end of 2020 – there were several prolific contributors for a while there, then radio silence…  any updates, positive or negative, from those who started their own personal trials would be much appreciated!!

[Stuart]

Hello John

I’m curious about your comment about autoimmune -related IPF potentially being stable for years.

I have autoimmune diseases coming out of my kazoo (ITP – low platelets; hypothyroid; keratoconus in one eye) and these have all been with me for over 20 years, albeit without causing major disruption.  So I wondered if they might in some way explain my IPF, which was diagnosed in 2019 as a result of a CT scan for prostate cancer (gosh, I’m really beginning to sound like a basket case here!).  I’ve been on Ofev for about a year and don’t enjoy it –  my LFTs have ben stable plus there’s no sign of progression on X-rays.  Biopsy isn’t that commonly employed for IPF diagnosis in Australia, but my pulmonologist is in little doubt that he’s right about the IPF – can you tell me anything about the autoimmune disease linkage you’re referring to, pls?

Stuart

[Stuart]

Pliant seem to have done a deal with Novartis for a series of compounds based on their EGCG work… Developing Novel Treatments for Fibrotic Diseases (pliantrx.com)

[Stuart]

Thanks Ron

Well, as you say, you seem to be on a pretty slow IPF track in any case, but the EGCG certainly doesn’t appear to be doing you any harm,…. I mighty give it a try.