Forum Replies Created

  • Bonnie Welch

    Member
    March 21, 2024 at 4:40 pm in reply to: Itchy Skin with Esbriet

    I was on Esbriet and developed itchy, almost like measles. I had to come off because they said it was an allergic reaction. Raised, itchy red bumps all over. I was put on antibiotics and a prescription CeraVe cream. It took about a month to go away.

  • Bonnie Welch

    Member
    April 5, 2023 at 8:33 am in reply to: Vaccinated PF people and COVID 19

    Hi,

    I have IPF. I am currently on Ofev and being evaluated for a transplant. I’m not on any IV therapy and, as yet, do not require 24/7 O2. I have had 2 Moderna vaccines and 2 Moderna multiclonal vaccines.

    I did test positive for COVID. I immediately went on Paxlovid. I honestly have had worse colds. Slight sore throat, no increase in cough from IPF dry cough, and sniffles. Even the fatigue didn’t seem greater than what I am used to.

     

    maybe I was lucky.