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  • Profile picture of jaime L manriquez
    active 7 hours, 56 minutes ago
    - "Hello everyone my IPFers friends, Reading the latest on PF research, It come to my mind SETANAXIB-formerly GKT831, good news for us is in 2nd fase of testing in the US, anybody knows more about this new […]"View
  • Profile picture of Karen Larson Gonsler
    active 1 day, 11 hours ago
  • Profile picture of Steve Dragoo
    active 1 day, 20 hours ago
    - "@jackblum Hey Jack – thanks for your post. I start laser therapy tomorrow. I would like to let you know I am having good results with serrapeptase on my lungs and a B vitamin complex for endurance. We may not […]"View
  • Profile picture of Gerry Raker
    active 2 days, 4 hours ago
  • Profile picture of Terry Moriarty
    active 2 days, 7 hours ago
  • Profile picture of Bill Mattila
    active 2 days, 9 hours ago
    - "Also Charlene THANK YOU for hosting this forum. You are a god sent angel."View
  • Profile picture of Rene Hakkenberg
    active 2 days, 13 hours ago
  • Profile picture of Gregory Dixon
    active 3 days, 2 hours ago
  • Profile picture of Robert B
    active 1 week, 2 days ago
    - "@charlene-marshall I really appreciated what you wrote about finding some good things during this hard time of isolation. I identified with many of them. I’m walking my dog everyday which I always refused to do […]"View
  • Profile picture of Ed
    active 1 week, 4 days ago
    - "HI Charlene, I am new to the forum and enjoyed following your Hawaii holiday. I am going on a vacation in May which will take me from NL to Las Vegas for 3 days ,then to Hawaii where I will spend 3 days before […]"View
  • Profile picture of Patricia Williams
    active 2 weeks, 5 days ago
    - "@charlene-marshall I have been getting steroid shots and now dealing with hair loss. Also I am on Ofev and that seems to be a cause of hair loss as well. Anyone else? Has anyone had any luck with hair regrow […]"View
  • Profile picture of Chuck Pefley
    active 1 month ago
  • Profile picture of Glenda Rouland
    active 1 month, 2 weeks ago
  • Profile picture of Marsha
    active 1 month, 3 weeks ago
    - "@wendyray @drandyhall @charlene-marshall Hi, Wendy! I just read your post about starting laser therapy and happily want to share my own laser therapy experience. First, please allow me to say that I […]"View
  • Profile picture of Timothy Black
    active 1 month, 3 weeks ago
  • Profile picture of Nan
    active 1 month, 3 weeks ago
  • Profile picture of Chuck Harrison
    active 2 months ago
    - "Hello all, I’ve got a guestion for someone out there , I was diagnoised with ipf April 8th 2016 . Don’t qualify for transplant , and of late seem to be progressing slowly . I notice I’m having two occurrences of […]"View
  • Profile picture of Ginger Adelstone
    active 2 months ago
    - "Starting to sweat profusely. Had to have rotator cuff surgery and sleeping in my chair for comfort. It’s leather, but I put a lightwievht blanket on it. So I’m not touching it direct. Then during the night I wak […]"View
  • Profile picture of janis gorsline
    active 2 months, 1 week ago
    - "I am doing really good but this is my last message. In my apartment I have two hepa-filters and two salt lamps that keep my apartment dust-free, cleaning the air 24/7. Also with IPF you should sleep through the […]"View
  • Profile picture of gil
    active 2 months, 1 week ago
  • Profile picture of Michelle
    active 2 months, 2 weeks ago
  • Profile picture of Dipanwita Samanta
    active 2 months, 3 weeks ago
  • Profile picture of Jean-Michel Fourrier
    active 3 months ago
    - "I would be very interested to have contact with French members participating in forums and anyone practicing golf .. a big thank you"View
  • Profile picture of linda waldschmidt
    active 3 months ago
    - "Your local pulmonologists tells you when you should use your oxygen. Your COE pulmonologist says different. Has this happened to other people? It makes it confusing for the patient."View
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