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Chuck Harrison

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@chuck-harrison

Hello all, I’ve got a guestion for someone out there , I was diagnoised with ipf April 8th 2016 . Don’t qualify for transplant , and of late seem to be progressing slowly . I notice I’m having two occurrences of late a wonder who out there is going maybe thru the same things . One is bronchial spasms frequently , also eating . It seems no […] View
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  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic The Awkwardness of Wearing A Mask In Public in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 10 months ago

    Hi Charrlene ,

    i remember having this talk with you many months ago . Since October 2019 I’ve worn a mask nothing exotic just plain surgical mask  ( all different colors ) but wear them just the same . I have never once noticed nor can I say I can care less what others think of me . My life , not theirs , my comfort not their . I believe now…[Read more]

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    Chuck Harrison posted an update 3 years, 1 month ago

    Hello all,
    I’ve got a guestion for someone out there , I was diagnoised with ipf April 8th 2016 . Don’t qualify for transplant , and of late seem to be progressing slowly . I notice I’m having two occurrences of late a wonder who out there is going maybe thru the same things . One is bronchial spasms frequently , also eating . It seems no matter…[Read more]

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 1 month ago

      Hi @chuck-harrison,

      So nice to hear from you! Sorry to hear you’re dealing with the bronchial spasms, that sounds awful. I don’t have much experience with acid issues or GERD – not yet anyways. I do know however this has been an issue for many other forum members. Have you checked out the thread on GERD? Maybe something in there will help.…[Read more]

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Do you take OFEV? Take our poll! in the forum Polls & Quizzes 3 years, 1 month ago

    Yes , started out at 300 , now 200

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Aloha from Hawaii in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 3 months ago

    Hi Charlene , how’s your day going so far ? Over the lag , or are you dealing with it .

    charlene I’m on Facebook messenger just type in my name and we will be in touch

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Canadian Thanksgiving Reminds Me to Be Grateful in the forum Canadians Living with Pulmonary Fibrosis 3 years, 3 months ago

    And a happy thanksgiving to you young lady ,

    so good to hear that your holiday was what you wanted and needed it to be .

    thankfullness where do you start and where does it end ? For me it starts with God , with out him I would not have the attitude I do .

    of course family and friends , if you knew my family you would realize why we need to be…[Read more]

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    Chuck Harrison changed their profile picture 3 years, 3 months ago

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    Chuck Harrison replied to the topic Aloha from Hawaii in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 4 months ago

    Hi Charlene.

    Have you notice any difference in breathing salt air ?

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Aloha from Hawaii in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 4 months ago

    Have a great time Charlene !

    You friend , Chuck

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Your Personal Travel Tips For Patients with PF in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 4 months ago

    Hi Charlene ,

    hope your have a great time   😎❤️

    Youll have to let me know how sea air is working for you ,

    as always your friend ,

    Chuck

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Pain Awareness Month in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 4 months ago

    Hi Mark ,,

    i also suffer from heart disease , rumatoid arthris ( hips shoulders and knees ) and its active , diabetes . The list is long , what do I do , I use to forms of morophin , pill and liquid , so that’s what I deal daily .

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Periodic Muscle Cramps & Pain Since IPF Diagnosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 4 months ago

    i would love to see Hawaii through your eyes !

    Be safe my friend

    Chuck

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Periodic Muscle Cramps & Pain Since IPF Diagnosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 5 months ago

    Hi. My friend ,

    cramps cramps cramps , oh I’m so sick of them I can’t stand them . My hands but it’s my calf muscles that torture me ! They get so bad esp, my left calf muscle to the point it affect my Achilles . Well more 02 I thought the same thing and to be honest it did help at first , but about a week later it stopped no more relief .tried…[Read more]

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    Chuck Harrison replied to the topic The Frequency of Changing Your Nasal Cannula in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 5 months ago

    Hi Charlene ,

    always happy to read your blog . How have you been ?

    Lim not to bad . As far as changing cannulas , about a year ago I came across a super deal on super soft cannulas ( 150) in a case on eBay , very soft ! As far a changing them , when the cannula starts to feel stiff that’s when I change it . When I first started the Vna that used…[Read more]

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    Chuck Harrison replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 3 years, 6 months ago

    Howdy , I live in Conewango Valley, it’s way in the southern tier of New York , this is the closest blog that I know of ,mean across it by accident ,, my nearest hospital is 20 miles away

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic The Impact of Spreading Random Kindness in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 6 months ago

    Hi Charlene

    Kindness , I believe random acts of kindness is necessary for the soul ! My wife and I raised our children on ” random acts ) of kindness not only helps others believe that no matter how bad you feel or how bad the world seems there still much good left ! It also is good for your soul especially if you are disabled and can do this…[Read more]

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Tips for Carrying Multiple Items as a Patient with PF. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 7 months ago

    Hi Charlene it,has been a long trail I’ve been for these months. In this time I found out ( not surprised ) that I do not qualify for a lung transplant . Also found out that my immune  system terribly compromised ! So n these past months I have fought off several infections one almost landed me in the hospital , but I managed to (power through )…[Read more]

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Tips for Carrying Multiple Items as a Patient with PF. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 7 months ago

    @rayna-meryl

    I have an ingogen 3 continuous flow concentrator I use 24/7 it goes to 5 hope it helps

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Tips for Carrying Multiple Items as a Patient with PF. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 8 months ago

    Hi my friend ,

    i want you to know that I’m still with you ! It has been a long time hasn’t it ? So let me try and catch you up , I was and still am very sick , things went from good to bad , bad to good to where  I am right now first of all I can tell you that I do not like hospitals one bit ! Lousy food ( lol) . I have developed new things ( I…[Read more]

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic How Our Online Forums Are Sustaining Me Through Pulmonary Fibrosis. in the forum Young Adults Living with Pulmonary Fibrosis (40 & Under) 3 years, 10 months ago

    Well hello Charlene ,

    It has been a really long time ! But I’m hear , alive and back to my base line ! The winter had taken its toll on my health in not so healthy of a way . But that being said hardly a day  went by that I missed reading the blog 😎 . While being treated for a upper respitory  infection my doctor had me start a med called t…[Read more]

  • Profile picture of Chuck Harrison

    Chuck Harrison replied to the topic Six-Minute Walk Tests in the forum Upcoming Medical Appointments: Q&As 3 years, 11 months ago

    I have never had a full ” 6 minute test” , while going from his office to the treadmill I dropped to 77-78 he said he’d seen enough ( lol ) and the 02 was ordered  24/7 , 2 litres but I’m up to 3-4 . From april2016 till now ! Catscans ensued and IPF Diagnosis in short fashion .

    Your friend as always

    chuck

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