@chuck-harrison
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Chuck Harrison replied to the topic The Awkwardness of Wearing A Mask In Public in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 10 months ago
Hi Charrlene ,
i remember having this talk with you many months ago . Since October 2019 I’ve worn a mask nothing exotic just plain surgical mask ( all different colors ) but wear them just the same . I have never once noticed nor can I say I can care less what others think of me . My life , not theirs , my comfort not their . I believe now…[Read more]
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Chuck Harrison posted an update 3 years, 1 month ago
Hello all,
I’ve got a guestion for someone out there , I was diagnoised with ipf April 8th 2016 . Don’t qualify for transplant , and of late seem to be progressing slowly . I notice I’m having two occurrences of late a wonder who out there is going maybe thru the same things . One is bronchial spasms frequently , also eating . It seems no matter…[Read more] -
Chuck Harrison replied to the topic Do you take OFEV? Take our poll! in the forum Polls & Quizzes 3 years, 1 month ago
Yes , started out at 300 , now 200
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Chuck Harrison replied to the topic Aloha from Hawaii in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 3 months ago
Hi Charlene , how’s your day going so far ? Over the lag , or are you dealing with it .
charlene I’m on Facebook messenger just type in my name and we will be in touch
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Chuck Harrison replied to the topic Canadian Thanksgiving Reminds Me to Be Grateful in the forum Canadians Living with Pulmonary Fibrosis 3 years, 3 months ago
And a happy thanksgiving to you young lady ,
so good to hear that your holiday was what you wanted and needed it to be .
thankfullness where do you start and where does it end ? For me it starts with God , with out him I would not have the attitude I do .
of course family and friends , if you knew my family you would realize why we need to be…[Read more]
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Chuck Harrison changed their profile picture 3 years, 3 months ago
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Chuck Harrison replied to the topic Aloha from Hawaii in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 4 months ago
Hi Charlene.
Have you notice any difference in breathing salt air ?
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Chuck Harrison replied to the topic Aloha from Hawaii in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 4 months ago
Have a great time Charlene !
You friend , Chuck
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Chuck Harrison replied to the topic Your Personal Travel Tips For Patients with PF in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 4 months ago
Hi Charlene ,
hope your have a great time 😎❤️
Youll have to let me know how sea air is working for you ,
as always your friend ,
Chuck
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Chuck Harrison replied to the topic Pain Awareness Month in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 4 months ago
Hi Mark ,,
i also suffer from heart disease , rumatoid arthris ( hips shoulders and knees ) and its active , diabetes . The list is long , what do I do , I use to forms of morophin , pill and liquid , so that’s what I deal daily .
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Chuck Harrison replied to the topic Periodic Muscle Cramps & Pain Since IPF Diagnosis in the forum Diagnosis Information and General Questions 3 years, 4 months ago
i would love to see Hawaii through your eyes !
Be safe my friend
Chuck
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Chuck Harrison replied to the topic Periodic Muscle Cramps & Pain Since IPF Diagnosis in the forum Diagnosis Information and General Questions 3 years, 5 months ago
Hi. My friend ,
cramps cramps cramps , oh I’m so sick of them I can’t stand them . My hands but it’s my calf muscles that torture me ! They get so bad esp, my left calf muscle to the point it affect my Achilles . Well more 02 I thought the same thing and to be honest it did help at first , but about a week later it stopped no more relief .tried…[Read more]
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Chuck Harrison replied to the topic The Frequency of Changing Your Nasal Cannula in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 5 months ago
Hi Charlene ,
always happy to read your blog . How have you been ?
Lim not to bad . As far as changing cannulas , about a year ago I came across a super deal on super soft cannulas ( 150) in a case on eBay , very soft ! As far a changing them , when the cannula starts to feel stiff that’s when I change it . When I first started the Vna that used…[Read more]
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Chuck Harrison replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 3 years, 6 months ago
Howdy , I live in Conewango Valley, it’s way in the southern tier of New York , this is the closest blog that I know of ,mean across it by accident ,, my nearest hospital is 20 miles away
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Chuck Harrison replied to the topic The Impact of Spreading Random Kindness in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 6 months ago
Hi Charlene
Kindness , I believe random acts of kindness is necessary for the soul ! My wife and I raised our children on ” random acts ) of kindness not only helps others believe that no matter how bad you feel or how bad the world seems there still much good left ! It also is good for your soul especially if you are disabled and can do this…[Read more]
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Chuck Harrison replied to the topic Tips for Carrying Multiple Items as a Patient with PF. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 7 months ago
Hi Charlene it,has been a long trail I’ve been for these months. In this time I found out ( not surprised ) that I do not qualify for a lung transplant . Also found out that my immune system terribly compromised ! So n these past months I have fought off several infections one almost landed me in the hospital , but I managed to (power through )…[Read more]
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Chuck Harrison replied to the topic Tips for Carrying Multiple Items as a Patient with PF. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 7 months ago
I have an ingogen 3 continuous flow concentrator I use 24/7 it goes to 5 hope it helps
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Chuck Harrison replied to the topic Tips for Carrying Multiple Items as a Patient with PF. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 8 months ago
Hi my friend ,
i want you to know that I’m still with you ! It has been a long time hasn’t it ? So let me try and catch you up , I was and still am very sick , things went from good to bad , bad to good to where I am right now first of all I can tell you that I do not like hospitals one bit ! Lousy food ( lol) . I have developed new things ( I…[Read more]
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Chuck Harrison replied to the topic How Our Online Forums Are Sustaining Me Through Pulmonary Fibrosis. in the forum Young Adults Living with Pulmonary Fibrosis (40 & Under) 3 years, 10 months ago
Well hello Charlene ,
It has been a really long time ! But I’m hear , alive and back to my base line ! The winter had taken its toll on my health in not so healthy of a way . But that being said hardly a day went by that I missed reading the blog 😎 . While being treated for a upper respitory infection my doctor had me start a med called t…[Read more]
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Chuck Harrison replied to the topic Six-Minute Walk Tests in the forum Upcoming Medical Appointments: Q&As 3 years, 11 months ago
I have never had a full ” 6 minute test” , while going from his office to the treadmill I dropped to 77-78 he said he’d seen enough ( lol ) and the 02 was ordered 24/7 , 2 litres but I’m up to 3-4 . From april2016 till now ! Catscans ensued and IPF Diagnosis in short fashion .
Your friend as always
chuck
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Hi @chuck-harrison,
So nice to hear from you! Sorry to hear you’re dealing with the bronchial spasms, that sounds awful. I don’t have much experience with acid issues or GERD – not yet anyways. I do know however this has been an issue for many other forum members. Have you checked out the thread on GERD? Maybe something in there will help.…[Read more]