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	<title>Pulmonary Fibrosis News Forums | Debbie k | Activity</title>
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				<title>Debbie replied to the discussion Alternative treatment in the forum Supplements and Non-traditional Management of PF</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/alternative-treatment/#post-36717</link>
				<pubDate>Mon, 04 Mar 2024 02:07:49 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/alternative-treatment/#post-36717"><span class="bb-reply-lable">Reply to</span> Alternative treatment</a></p> <div class="bb-content-inr-wrap"><p>Hello </p>
<p>I’m also interested in this program. I’m in Illinois. Not sure how the acupuncture would work?</p>
<p>Also could you share a bit of your history ex (age, a bit of your health history)</p>
<p>I’m 73 yrs old and with other health issues. </p>
<p>Also some idea of cost would be wonderful. Retired and on a budget. </p>
<p>Thank you very much for your time!&#x1f60a;</p>
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				<title>Debbie replied to the discussion Mayo Clinic in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/mayo-clinic/#post-36570</link>
				<pubDate>Tue, 06 Feb 2024 22:19:46 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/mayo-clinic/#post-36570"><span class="bb-reply-lable">Reply to</span> Mayo Clinic</a></p> <div class="bb-content-inr-wrap"><p>Hi Carol</p>
<p>May I ask your age age what stage u r at?? I had considered it. But I don’t have a good support system to get me there. I’m not sure I have enough of energy at this point to get through the testing. I was all setup for the testing and changed my mind. Of course now I’m questioning my decision. I’m 73 and was rejected for&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-41485"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/mayo-clinic/#post-36570" rel="nofollow"> Read more</a></span></p>
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				<title>Debbie replied to the discussion Hard time Breathing in the mornings. in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/hard-time-breathing-in-the-mornings/#post-36543</link>
				<pubDate>Wed, 31 Jan 2024 02:53:26 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/hard-time-breathing-in-the-mornings/#post-36543"><span class="bb-reply-lable">Reply to</span> Hard time Breathing in the mornings.</a></p> <div class="bb-content-inr-wrap"><p>Hi Dawn. My name is Debbie. Just wondering what you mean by pulmonary therapy? I tried pulmonary rehab and failed. I can’t walk more then 10-15 ft and I’m not breathing well </p>
<p>I’ve been on Ofev for 1 1/2 years had to get off  I had every side effect that was posted plus some very odd ones  I was dealing with ulcers all over and ended up&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-41434"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/hard-time-breathing-in-the-mornings/#post-36543" rel="nofollow"> Read more</a></span></p>
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				<title>Debbie replied to the discussion Air Physio in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/air-physio/#post-36527</link>
				<pubDate>Fri, 26 Jan 2024 06:56:48 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/air-physio/#post-36527"><span class="bb-reply-lable">Reply to</span> Air Physio</a></p> <div class="bb-content-inr-wrap"><p>Sorry I reread my message and realized I didn’t state which machine I was talking about.   The one I was interested in is the DR Burton V pep. That’s the main one I was talking about. </p>
<p>Thank you</p>
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				<title>Debbie replied to the discussion Air Physio in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/air-physio/#post-36526</link>
				<pubDate>Fri, 26 Jan 2024 06:47:46 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/air-physio/#post-36526"><span class="bb-reply-lable">Reply to</span> Air Physio</a></p> <div class="bb-content-inr-wrap"><p>Could you let us know where you found this item. Very interested. I’ve tried a few and didn’t do much for me. Willing to try one more. Don’t have much of a cough and no mucous. It’s kind of strange that I don’t. I’m going on year four and no to many symptoms. I’m getting off of steroids. I think that’s making me feel better! My problem is&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-41399"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/air-physio/#post-36526" rel="nofollow"> Read more</a></span></p>
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				<title>Debbie replied to the discussion Swollen Belly IPF in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/swollen-belly-ipf/#post-35880</link>
				<pubDate>Fri, 01 Sep 2023 01:17:50 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/swollen-belly-ipf/#post-35880"><span class="bb-reply-lable">Reply to</span> Swollen Belly IPF</a></p> <div class="bb-content-inr-wrap"><p>Hello</p>
<p>Just wanted to share what I was told about the bloating. I too look about 9 months pregnant. But my abdomen isn’t hard. My primary doctor told me it could be extra o2 that I’m not expelling. I’m on O2. 24/7. At 7-8 liters. I’m always bloated and consipated. I’m on pain meds for other reasons which presents another bunch of problems. &hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-40163"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/swollen-belly-ipf/#post-35880" rel="nofollow"> Read more</a></span></p>
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				<title>Debbie replied to the discussion Initial Oximeter readings sometimes low in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/initial-oximeter-readings-sometimes-low/#post-35720</link>
				<pubDate>Thu, 24 Aug 2023 20:12:03 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/initial-oximeter-readings-sometimes-low/#post-35720"><span class="bb-reply-lable">Reply to</span> Initial Oximeter readings sometimes low</a></p> <div class="bb-content-inr-wrap"><p>Denny</p>
<p>hi I have one questions for u please. How were u diagnosed with pneumonia?? Thank you. My pulmonologist said I have a constant infection. Thinking that’s the same thing??<br />
I meant pneumonitis. Sorry</p>
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				<title>Debbie replied to the discussion Initial Oximeter readings sometimes low in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/initial-oximeter-readings-sometimes-low/#post-35719</link>
				<pubDate>Thu, 24 Aug 2023 20:10:06 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/initial-oximeter-readings-sometimes-low/#post-35719"><span class="bb-reply-lable">Reply to</span> Initial Oximeter readings sometimes low</a></p> <div class="bb-content-inr-wrap"><p>Denny</p>
<p>hi I have one questions for u please. How were u diagnosed with pneumonia?? Thank you. My pulmonologist said I have a constant infection. Thinking that’s the same thing??</p>
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				<title>Debbie replied to the discussion Has anyone had a double lung transplant also kidney transplant at the same time. in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/has-anyone-had-a-double-lung-transplant-also-kidney-transplant-at-the-same-time/#post-35583</link>
				<pubDate>Thu, 10 Aug 2023 22:53:12 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/has-anyone-had-a-double-lung-transplant-also-kidney-transplant-at-the-same-time/#post-35583"><span class="bb-reply-lable">Reply to</span> Has anyone had a double lung transplant also kidney transplant at the same time.</a></p> <div class="bb-content-inr-wrap"><p>Don’t believe they would do that<br />
Your body would be in almost perfect condition to go through that?</p>
<p>Talk to your Doctors on that subject.</p>
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				<title>Debbie replied to the discussion Ventilator Settings Question in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/ventilator-settings-question/#post-35252</link>
				<pubDate>Thu, 22 Jun 2023 19:52:30 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/ventilator-settings-question/#post-35252"><span class="bb-reply-lable">Reply to</span> Ventilator Settings Question</a></p> <div class="bb-content-inr-wrap"><p>May I ask why is he on the ventilator?? I was IPF and have been on Ofev and off. A lot of sign effects and my doc said my lungs are past being helped by the two meds for fibrosis. I have my O2 set at 7 and I cease it for doing things. Not doing much anymore. Interested as to why dad is on ventilator. Hope u can respond.<br />
Thank you</p>
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				<title>Debbie replied to the discussion Cleveland Clinic Info in the forum Using Our Forums</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/cleveland-clinic-info/#post-35162</link>
				<pubDate>Tue, 06 Jun 2023 21:05:43 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/cleveland-clinic-info/#post-35162"><span class="bb-reply-lable">Reply to</span> Cleveland Clinic Info</a></p> <div class="bb-content-inr-wrap"><p>&lt;p style=&#8221;text-align: right;&#8221;&gt;I to have been rejected for transplant at the university of Chicago. My sister also had IPF and was waiting for lungs. Her antibodies were very different and she passed before lungs were available. My health history is extensive which is why I was rejected. Also After talking to several pulmonologist they all said&hellip;<span class="activity-read-more" id="activity-read-more-39006"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/cleveland-clinic-info/#post-35162" rel="nofollow"> Read more</a></span></p>
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				<title>Debbie replied to the discussion Cleveland Clinic Info in the forum Using Our Forums</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/cleveland-clinic-info/#post-35161</link>
				<pubDate>Tue, 06 Jun 2023 21:03:44 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/cleveland-clinic-info/#post-35161"><span class="bb-reply-lable">Reply to</span> Cleveland Clinic Info</a></p> <div class="bb-content-inr-wrap"><p>&lt;p style=&#8221;text-align: right;&#8221;&gt;I to have been rejected for transplant at the university of Chicago. My sister also had IPF and was waiting for lungs. Her antibodies were very different and she passed before lungs were available. My health history is extensive which is why I was rejected. Also Alfred talking to several pulmonologist they all&hellip;<span class="activity-read-more" id="activity-read-more-39005"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/cleveland-clinic-info/#post-35161" rel="nofollow"> Read more</a></span></p>
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				<title>Debbie replied to the discussion Cleveland Clinic Info in the forum Using Our Forums</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/cleveland-clinic-info/#post-35160</link>
				<pubDate>Tue, 06 Jun 2023 21:03:44 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/cleveland-clinic-info/#post-35160"><span class="bb-reply-lable">Reply to</span> Cleveland Clinic Info</a></p> <div class="bb-content-inr-wrap"><p>&lt;p style=&#8221;text-align: right;&#8221;&gt;I to have been rejected for transplant at the university of Chicago. My sister also had IPF and was waiting for lungs. Her antibodies were very different and she passed before lungs were available. My health history is extensive which is why I was rejected. Also Alfred talking to several pulmonologist they all&hellip;<span class="activity-read-more" id="activity-read-more-39004"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/cleveland-clinic-info/#post-35160" rel="nofollow"> Read more</a></span></p>
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				<title>Debbie posted a new activity comment</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/8804/#acomment-38744</link>
				<pubDate>Wed, 17 May 2023 04:00:12 -0500</pubDate>

									<content:encoded><![CDATA[<p>Where do u we that herb weii. And how expensive is it?? Tia</p>
				<strong>In reply to</strong> -
					<a href="https://pulmonaryfibrosisnews.com/forums/members/denny-eliassen/" data-bb-hp-profile="848" rel="nofollow">Denny Eliassen</a> posted an update Charlene, have you tried the WEI products yet?					]]></content:encoded>
				
				
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				<title>Debbie replied to the discussion Does anyone get relief from breathlessness in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/does-anyone-get-relief-from-breathlessness/#post-35060</link>
				<pubDate>Wed, 17 May 2023 02:22:27 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/does-anyone-get-relief-from-breathlessness/#post-35060"><span class="bb-reply-lable">Reply to</span> Does anyone get relief from breathlessness</a></p> <div class="bb-content-inr-wrap"><p>Hi I have had two exacerbation  and with each my O2 level has increased. I’m now at 6 or 7. Talk to you pulmonologist and cardiologist. U need to be evaluated. I also had pneumonia with each exacerbation and things got worse.   Also I can’t remember exactly but my pulmonologist explained that my carbon monoxide can’t be exhaled which&hellip;<span class="activity-read-more" id="activity-read-more-38737"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/does-anyone-get-relief-from-breathlessness/#post-35060" rel="nofollow"> Read more</a></span></p>
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				<title>Debbie replied to the discussion Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/life-span/#post-35061</link>
				<pubDate>Wed, 17 May 2023 02:22:15 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/life-span/#post-35061"><span class="bb-reply-lable">Reply to</span> Life span</a></p> <div class="bb-content-inr-wrap"><p>Hello Cheryl</p>
<p>Glad you’re doing well. I’m in my 5th year with PF. I was misdiagnosed for the first two yrs. Long story. I also have emphysema. But was told my main problem is the PF. Just wanted to ask you the drug too going to take I’ve not heard of is it a newer one. I was on Ofev but had too many side effects and I’m taking a break. I&hellip;<span class="activity-read-more" id="activity-read-more-38736"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/life-span/#post-35061" rel="nofollow"> Read more</a></span></p>
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				<title>Debbie became a registered member</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/38300/</link>
				<pubDate>Wed, 12 Apr 2023 13:47:43 -0500</pubDate>

				
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