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    • #35100
      Ina Enslin

        My husband has been diagnosed in 2018. He was doing well until lately…. He is 24hrs on oxy. Lately does his belly swell a lot. And is hard as stone. Could it be beginning of end stages?

      • #35116
        Ruth Edwards

          I’m not sure but his situation is the same as mine.
          I’m starting my 8th year of PF, on oxygen 24/7 and in the last year my belly is bloated most of the time and sometimes hard.  I’ve found some of it is my diet, as I want to enjoy meals with my husband to add to our memories.  I think the medication itself has it’s own toxins that you need to drink a lot of water to help flush out.  Plus, make sure that you have regular BM’s, which isn’t always easy, with all the meds we need to take.  I have a phone appointment with my Palliative doctor on Monday & I’ll ask her if this is also an indication that this is the end stages.  I know for myself, I have definitely lost a lot of ground in the last month alone. I was walking a mile a day on the treadmill but it was starting to cause so many aches in my bones.  I’m also more and more sleepy…so?


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