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Tagged: Ipf belly swelling hard belly
My husband has been diagnosed in 2018. He was doing well until lately…. He is 24hrs on oxy. Lately does his belly swell a lot. And is hard as stone. Could it be beginning of end stages?
I’m not sure but his situation is the same as mine.
I’m starting my 8th year of PF, on oxygen 24/7 and in the last year my belly is bloated most of the time and sometimes hard. I’ve found some of it is my diet, as I want to enjoy meals with my husband to add to our memories. I think the medication itself has it’s own toxins that you need to drink a lot of water to help flush out. Plus, make sure that you have regular BM’s, which isn’t always easy, with all the meds we need to take. I have a phone appointment with my Palliative doctor on Monday & I’ll ask her if this is also an indication that this is the end stages. I know for myself, I have definitely lost a lot of ground in the last month alone. I was walking a mile a day on the treadmill but it was starting to cause so many aches in my bones. I’m also more and more sleepy…so?
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