David
Forum Replies Created
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I maybe different. I’ve been taking Esbriet since early 2019. I’ve read many sites and the information about Esbriet (symptoms of users, etc.). I’m 75, and am feeling and seeing some changes to my body and activities.
I take it all in stride as I’ve watched grandparents, parents, relatives and friends with different issues all slow down over time. I think my “fatigue” has to do with with all the pills I take for other issues, including IPF, it’s a mitt full, and is quite a drug cocktail 3 times a day. That, and just growing older.
Following a recent CT Scan I was given another 6 to 7 years, that will put me at 82, and then maybe I’ll get anther 6 to 7 estimate. What bothers me the most is my lower back. Herniated discs and spinal stenosis. I ‘ve had several surgeries that took away the pain I couldn’t live with for a pain(s) I can live with.
Even with my conditions I’ve already outlived many relatives and friends…So what’s to be angry at?
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I’ve been on Esbriet since 2019. I also feel tired, but it could be the mit of other pills I also take for other issues. I have a new pulmonologist (previous one retired) and he is going to schedule me for another CT scan to learn what has changed. Other than feeling tired I don’t demonstrate any of the known symptoms associated with IPF. I’m 74 years old, a male, have 95% oxigen level, do not take oxigen, and if I can go another 10 to 12 years like I feel now, I’ll be a happy camper!
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I have a cough, but I attribute it to sinus drainage. I’ve had sinus drainage for years before being diagnosed. My cough is more “clearing my throat” of phlegm than anything else. When I had the flu or a rhinovirus my cough came from my lungs, I know what that sensation is and it is different from clearing sinus drainage.
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I was 68 years old when I was diagnosed having IPF on August 17, 2018, and started titrating Esbriet January 12, 2019. The doctors were looking for something else (which they did not find) when they gave me a CT Scan and found the early signs of IPF when reviewing my results. I didn’t sense or feel any symptoms at that time, and still do not; I am not taking supplemental oxygen. I’ve been on Esbriet for about 3.75 years. My recent PFT summary (10-13-22) shows my FVC @ 3.66, my FVC% @ 70, my DLCO @ 20.31, and my DLCO% @ 53%. My side effects from Esbriet have been sun sensitivity, some dizziness, and some lethargy for about 30 minutes after taking the 3 pills. All livable conditions, considering the alternatives.
I was worried about the 3 to 5 year lifespan reported on too many websites. But believe I’ll be around for a good many years to come.
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You have my best wishes!
My advice is to follow your physician’s directions…
Dranyam