Suzanne
Forum Replies Created
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Ginget-Debetty:
I’ve had IPF for 2 years and suffered from diverticulitis frequently. Last July, I had colon resection surgery and it turned out just fine. 20 inches of colon was removed and my recovery was painless and uneventful. No complications because of my medical condition with the pulmonary fibrosis. I did have a top-notch surgeon and that was a source of comfort. So much better than suffering with diverticulitis on a regular basis.
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I was diagnosed in the fall of 2021. I’m pretty sure I was dealing with IPf for months prior to the diagnosis. I started taking OFEV shortly thereafter, 100 MG, and dealt with a lot of diarrhea, fatigue and headaches. My pulmonologist switched my dosage to 150 MG, but after a few months I had to dial back to 100. I don’t know if it’s the medication or the pulmonary fibrosis, but I feel just plain crummy most of the time. I recently discontinued the medication for about 6 weeks as I am having surgery in July for diverticulitis. The medication causes so many issues with the colon I thought it would be best to settle things down before surgery. Plus, I was hoping I would feel better not taking it. Still don’t feel well, but do have some good days here and there. I am not looking forward to going back on the OFEV, but pretty sure I will as I want to do whatever I can just slow the progression. By the way, I’m 75 years old and felt amazing before all this. I rely on my faith to keep me going. My best to all the dealing with IPF.
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Hi Sailor:
I was touched by your comments. I come from a strong military family and I admire the work you are doing to help veterans and others in your area. I think it is a good thing that you are staying busy while dealing with this difficult health condition. I am sorry to hear that your sons are not in contact with you as much as you would like. Hopefully they will reach out to you soon. This disease is exhausting and challenging. Some good days some bad days, but I try to stay busy as well. I have lived in beautiful Arkansas twice in my life and am sure you have a lovely area of the state. Best to you. Hang in there.
Suzanne