Ellen Macko
Forum Replies Created
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I have used Inogen for 5 years. However keep in mind at highest level ( mine is 6)it is only providing 1.26 L. I now can only use for driving otherwise I am on tanks. I was able to work with my Inogen for 10 months until I retired. The manufacturer is easy to talk to and provide support. All the best!
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Hi! I switched to 100 mg…it really helped yet the diarrhea continued. I always take with protein halfway through the meal. But fairly recently I began taking only Ofev with the meal and any other pills including vitamins an hour later. This in addition to the rest has really made a difference. All the best to you!
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Diagnosed in 2017 and needed O2 at night in 2018.Began Ofev in 2019 and lowered to 100 mg. Used POC for work and exercise and walking in 2019. Had first evaluation for transplant in 2019 and now going for 2nd evaluation. Had Covid in June and gradually ( by July) needed oxygen 24 hours. I am 71 and know the transplant journey is a challenge but I am hopeful I am now a candidate, get listed and have the surgery soon. I am just getting strength back and go to Pulmonary Rehab 2x a week. I hope to feel like Roger and Zach be able to be without oxygen and be more active like I was before ( when I first retired). Would be great to be able to play more with the grandkids and maybe try tennis, pickle ball or bike again. In God’s hands and know this is a tough decision for all of us.
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Retired in 2019 while working in LTC as a physical therapist. Infections were beginning that winter and needed to prevent exposure. I had worked for 46 years in the field and lucky for me it was just before Covid. The facility allowed me to use POC and they serve supportive. I do miss it and would have still worked 4 more years.