[George A Rydberg]

@jackie-leko-kalina

I have been taking the same amount as you. I take an Imodium with each pill. I also take a chewable Pepto if my stomach talks to me. I can’t handle much fiber so I stay with canned fruit and veggies, no salads. One of the earlier posts suggests protein with each pill. I find just eating anything helps. Yes, sometimes I get diarrhea, but not bad usually. I was doing Keto diet, but that didn’t set well so now I eat carbs and small amounts of protein. I did have an adjustment period, but it was only maybe two weeks. The drug has totally stopped the progression of the disease since spring of 2016. I am at about 60% of normal and have stayed there since 2016. I am happy. I wear  oxygen while I’m home but don’t normally use it when out and about. I do limit walking when I go someplace. I continue to believe I am living a great life just different one than most people. Good luck.

[George A Rydberg]

I have been taking Ofev since early in 2016 right after I was diagnosed with IPF. My lung capacity has not gone down since I started Ofev. It’s painless and the patient has nothing to lose. A program helps with the cost and my insurance covers the rest. Get them to start, it is never too soon. A good lung doctor would be pushing the medicine. The disease is fatal, but with the new drugs the time can sure be extended.
George

[George A Rydberg]

I have been taking Ofev since January of 2016. It has been working extremely well. The side affects are handled by taking Imodium. I take 2-150 mg pills and 3 Imodium, 2 in the morning and one at night. I also make sure to eat something with the medicine. I am not very active as I just cannot breathe when doing almost anything. Ofev is definitely a lifesaver.

[George A Rydberg]

I have been taking Ofev for over 3 years. I have not had to pay anything. My insurance pays after my co-pay. Open Doors finds help with the co-pay. I don’t know anyone personally who has not been helped by Open Doors with the co-pay. My doctor set it up when he first diagnosed me with IPF. Don’t delay starting Ofev as it works.

[George A Rydberg]

Charlene,

I have been doing rehab for 7 months. I decided to give it a try and it has helped. I increased the length I walked in the 6 minute test by 20% so I am happy. The program I go to isn’t recognized by Medicare so I am a self pay, but I don’t mind that. The nurses are very educated and also very friendly. It is a good social time and helps the stamina. Take care

[George A Rydberg]

I decided I have a good life no matter what. Good wife, good life. I go slow, but try to stay involved with things that mean something to me. Pulmonary rehab twice a week with great nurses and other great patients.

[George A Rydberg]

Yes-over 2 years