Sue Steele
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I had pneumonia last February 2020. While in the hospital had a cat scan. Pf was found. Since then I had broody done. No cancer,everything normal. I was put on 40 mg prednisone a day. I have been taking it for five months. That’s all that was done. Dr. Wants me to go on cellcept. I must come off prednisone. I use 1.5 oxygen to sleep. I put oxygen on 2 most of the day. I walk treadmill I use 3.5 oxygen for 45 minutes. I just had breathing test and it’s at 72percent. I don’t know what will happen when I get off prednisone but I go to Yale Newhaven to see my pulmonologist. Oct 14,2001. He said I do it have IPF. I have Pf. I don’t really understand the difference. No one in my family has ever had pf or IPF. I just don’t know what to think.any suggestions?
thank you,Sue
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What’s LEF?
I walk a treadmill each day. I’m on oxygen all the time also. My Dr. said I can adjust the oxygen level so that is over 90 on the finger oximeter. I put the level on number 3 and a half. I walk for 45 min.
regards,sue
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I wish I knew I had it earlier z I could have taken the medication that slows it down.
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My Dr. wants to put me incekkcept. I don’t know why? I have not had a transplant. I PF not IPF. Does anyone use that drug? The side effects are really bad or so I read. I’m not sure what I should do. I’m on oxygen but it’s set at 2. I have been told I have pf.