@jaimeluciano
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jaime L manriquez posted an update 2 years, 4 months ago
@charlene-marshall Hello charlene , long time no post, Well my flegm ordeal has tapered down quite a bit
I credited to prednisone for it , but only 5mg a day for a long time use. The bad news is that my IPF itis progressing more quickly now. Remember I was diagnose late 2012, now I´m on oxygen 24/7 almost. Can´t do anything physically ,if so , h…[Read more] -
Allan Byron and
jaime L manriquez are now friends 2 years, 8 months ago
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jaime L manriquez posted a new activity comment 2 years, 8 months ago
Hello jason, I don t blame your family member, in my case have IPF since 2013 I I have taken both medications ESBRIET and OFEV for a short while, none of them were good to me, horrible side efects, so 7 years with no medication, using oxygen only in exertions my saturation at rest 76%..Thinking about it now, I made the right decision , you´ll…[Read more]
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jaime L manriquez posted an update 2 years, 9 months ago
@reshma. This is jaime, I´m 71 years old and almost 8 years with IPF, no medications , 02 only on exertions, Talking about coughing at sleeping time. I tried so many things but the only medication that work on me is a Dr presc. CODEINE, or there is a cough syrup ..with codeine in it called FLEMEX with codeine, una tablespoon at bedtime and you…[Read more]
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jaime L manriquez replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years ago
hello Reshma,
I take 02 only on exertions, it work for me quite well, i walk avery day a bit, may be a block or so, slow, got tired and quit. Respect of your question of steroids for your mom Its no problem, my mom also with IPF she took 20mg of PREDNISONE every day once a day she lived more than 10 years with the deseas..In my case Im ta…[Read more]
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jaime L manriquez replied to the topic Immunosuppressants & Pulmonary Fibrosis in the forum Diagnosis Information and General Questions 3 years ago
Hello Charlene,
hope you are enjoying good summer weather up in Ontario, related to Immunosuppresants, should I take some? never took any,
best regards
Jaime
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jaime L manriquez replied to the topic New treatments in the forum Clinical Trials 3 years, 1 month ago
Hola Rene , you have a very good point there, EGCG extract would be much better , In my case I take about a liter a day of China green tea, three times. Thats lots of water too which is good for us may be not enough EGCG then. How you take the extract, its a more concentrate tea ?..Anyways I ll be alert to the comments, thanks for your reply, we…[Read more]
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jaime L manriquez replied to the topic EGCG Green Tea Extract in the forum Clinical Trials 3 years, 1 month ago
hello falks, I m on a green tea for a week already, got it from superstore, 2 little boxes of 20 bags each, inexpensive though, about US$ 2,00 two dollars per box. Will take em all 40 and will comment, best reagrads for all of you friends, hopping something good come out for all of us from researchers on this COVID-19
JAIME
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jaime L manriquez replied to the topic New treatments in the forum Clinical Trials 3 years, 1 month ago
Hi Rene, As soon as I read the article , went to superstore and got myself 2 packs of 20 bags each of GREEN TEA I m on it now since 3 days, feel better, I quit coffee all together though,
my phlegm an cough went down 30%, so will try for 10 days. best regards
jaime -
jaime L manriquez posted an update 3 years, 1 month ago
Hello everyone my IPFers friends,
Reading the latest on PF research, It come to my mind SETANAXIB-formerly GKT831, good news for us is in 2nd fase of testing in the US, anybody knows more about this new drug?.. me still fighting with my excess of phlegm especially after meals, best regards to everyone of you that makes my days more pleasents…[Read more] -
jaime L manriquez replied to the topic New treatments in the forum Clinical Trials 3 years, 2 months ago
Yes Joe you are right, we hope something good will come out of this horrible covid-19 , hope its sooner than latter, fingers crossed so researchers take a look at the “ground glass” shape Cat scans ,best wishes for all of you folks
Jaime
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jaime L manriquez replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 years, 2 months ago
Hello Steve Dragoo,
Thanks for your offer, woul like tu discuss with you about serrapetase, I´ll be alert to yours comments
thanks , best regards
jaime
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jaime L manriquez replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 years, 2 months ago
Hello Charlene,
long time no talk, hope you are well , In my case can t complaint, doing quite ok with the Phlegm at nites, I discover myself with the combination of two medications …bingo…., sleep 9 hrs. and no phlegm during nite….for our fellow IPFers, Mucinex syroup, and Phlemex with codeine syrup, 1 tablespoon of each at bedtime, t…[Read more]
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jaime L manriquez replied to the topic Metformin (?) Status Update in the forum Diagnosis Information and General Questions 3 years, 2 months ago
hello Kristin, yes , as Charlene said , Metformin its been tested on mice with a good outcome, in my case i m on it for a while, 850mg a day for my diabetes ll, I have IPF since 2013, I´m not taking any antifiobrotics, no 02 yet. I think its been good to me. ( I´m 71 )
best regards
jaime
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jaime L manriquez replied to the topic Commonly Prescribed Medication For Cholesterol May Benefit IPF Patients in the forum Flash Briefings & Podcasts 3 years, 3 months ago
Hi Betty,
I was in Crestor long time ego( 2 years) for my IPF 1 month, Gave me lots of bones and muscles pain, so I quit, in 2019 I was on atorvastatin wich is about the same , for 1 month no results, my pulmonologist precribe it for Respiratory track inflamation , did nothing on me, Now Im on Prednisone 5mg a day, good results…… bes…[Read more]
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jaime L manriquez replied to the topic Commonly Prescribed Medication For Cholesterol May Benefit IPF Patients in the forum Flash Briefings & Podcasts 3 years, 3 months ago
hi Luke,
refering to your question, my pulmonologist presccribed me statins for the respiratory track inflamation only , Prednisone work better for me . The studies in Rats showed that metformin it might help on reversing fibrosis, not approved for humans yet…Also Azithromycin it is been tested for ipf …hope some of this will cure this…[Read more]
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jaime L manriquez replied to the topic Prognosis Predictions for IPF Patients in the forum Diagnosis Information and General Questions 3 years, 4 months ago
Hi Jofac, ……just a bit of info. I ve been aroud quite a while with this horrendus desease, passed through several pulmonologists in Canada and Chile, I was on OFEV like you for two months, could´t put up with side effects , Statins for example they give it for inflamation of respiratory track( took it for a month did nothing on me) on the o…[Read more]
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jaime L manriquez replied to the topic Prognosis Predictions for IPF Patients in the forum Diagnosis Information and General Questions 3 years, 4 months ago
Hi Carlene , thanks for you words, like I said to Jofac, Im sure you will benefit from the cure for IPF, I´m already too old to see that, but you never know, the cure could come any time from now, lots researching around the globe. All the best for you
jaime
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jaime L manriquez replied to the topic Prognosis Predictions for IPF Patients in the forum Diagnosis Information and General Questions 3 years, 4 months ago
Hi Charlene , Rene and JillT, some time ago we talk about this topic. By the way, Puma Rodriguez, he was singing live here in Santiago last week, his case I think is exceptional, and prove that everybody is different when it comes to this horrible desease, my case for instance : diagnosed back at the end of 2012, took ofev for 2 months, c…[Read more]
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jaime L manriquez posted a new activity comment 3 years, 4 months ago
Carlene, my phlegm is very clear, my dr said its normal for IPF, but since I m on 5mg a day Prednisone , its much better…other thing I found is the sweets, I cut down to half, also helps to reduce my phlegm,.. best regards from Chile
jaime-
Hi Jaime,
So nice to hear from you and even happier to hear that the phlegm is being reduced by less sugar/sweets intake and the prednisone. It’s interesting, some people with IPF have a dry, chronic cough and some have a productive cough with a lot of phlegm. I’m really glad you’ve found some things that are working for you, thanks for sharing…[Read more]
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Hi @jaimeluciano, nice to hear from you — thanks for the update on how you’re doing. I’m glad to hear the phlegm order has subsided, I know that can be so difficult to navigate. I know a lot of patients who are on a low dose/maintenance dose of prednisone, so I’m glad that is helping though so sorry to hear about the faster progression of IPF.…[Read more]