Jean
Forum Replies Created
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Hi
I’m 84 years old and was diagnosed with IPF last April. After finding funding for Ofev I started it at the 150 mg dose. After 2 months of it I had trouble even looking at food and had to stay home unless I took immodium. My family said I changed and was very depressed although I didn’t notice it. I stopped it before Christmas because I wanted to be able to be with people. I had lost 8 pounds but gradually felt much better. My hair is now falling out. I am not on oxygen although I could use it while walking. I read all these stories and want to be as successful with Ofev as they are. My dr is willing to restart it but thinks it will be the same thing even on the lower dose. I did all the suggestions. Protein etc. My question is can most people take it and live a fairly normal life? How? Am I the only one who can’t deal with Ofev?
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I have both. I can recover with a small rest after dragging the bricks. But I also sleep long hours at night and it’s still hard to get up and get going in the am.
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My dr. has never discussed my degree of fibrosis with me. I was diagnosed 3 months ago. I suggested the Ofev since it is only 2 pills a day. I have been taking it for 6 weeks. I have IPF.
I have many side effects. The diarrhea is horrible. I have little appetite and things taste strange. I also have sweats and chills. This coupled with the fatigue makes it hard to carry on. I may ask my dr. to lower the dosage.