• Jim Dawson posted an update 3 years, 3 months ago

    Thank you for the information. I told the Dr. I was very apprehensive concerning the lung biopsy. He is my second opinion Dr. as I was told to get off of predisone before they could do the biopsy. With a 30% chance of nor finding out what type of Pulmonary Fibrosis I have, just seems too high. Then there is a 2% death rate on top of that. Since there are only a couple of medications that treat Fibrosis I think this is more data for testing purposes than treating PF. I still have one more option and that is to go to a 3rd doctor, which I think I will do, But I have to go to the Veterans Hospital to do that. I am apprehensive about that too.

    • Hi Jim, I was apprehensive when that doctor wanted to get a 2nd opinion , after many visits I finally relented and agreed (my pulmonary function was getting less) and this is when I met Dr DeBoer and she adamantly said NO to another biopsy! YAY! I’ve been dealing with this nasty gagging cough for over 15 years and I just feel so many doctors just passed me on to another specialist ….very infuriating to say the least. I’m currently (since late FEbruary on Mycophenolate) it’s certainly not a cure but dr DeBoer is hoping it will keep my lungs from getting worse. And in a couple of weeks I’m going to Toronto for a 5 day assessment to see if I will be on the list ! Keep your fingers crossed for me Jim …..I hope you will find a better doctor for your lungs because I sure finally did. I’m assuming you live in the States, I am in Canada 🇨🇦 please feel free to email me @. [email protected]

    • Hi @jim-dawson, I just corresponded with a wonderful member of the forums by responding to his post about lung transplantation. In his opening, @les-viegas shared that he had a lung biopsy to get his diagnosis. Might be worth it to try and reach out to him directly to hear about his experience? Was just thinking it might be helpful 🙂


©2021 KLEO Template a premium and multipurpose theme from Seventh Queen


We're not around right now. But you can send us an email and we'll get back to you, asap.


Log in with your credentials


Forgot your details?

Create Account