Pulmonary Fibrosis News Forums | joe hick | Activity https://pulmonaryfibrosisnews.com/forums/members/joehick0529/activity/ Activity feed for joe hick. Wed, 08 Apr 2026 13:16:36 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 a23c1b3047bd287b38a30cc05cb9aa39 joe hick replied to the discussion libido in the forum Fun and General Chat https://pulmonaryfibrosisnews.com/forums/forums/topic/libido/#post-39275 Fri, 30 Jan 2026 21:09:19 -0600 Reply to libido

It’s not the meds, it’s the oxygen

]]> 97387b133ff224eca0783c897ffcc2b3 joe hick replied to the discussion Tell me your questions about Jascayd (nerandomilast) in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/tell-me-your-questions-about-jascayd-nerandomilast/#post-39264 Tue, 27 Jan 2026 22:08:00 -0600 Reply to Tell me your questions about Jascayd (nerandomilast)

I have been on and off Jascayd now for about two months. Issues due to heart disease and afib. Med interactions with Diltiazem. My last issue was headaches, lite headed and fast heart rate. I am going to request the 9mg rx and hopefully that will do it.

Anyone else have issues like mine?

]]> ff1dce517015e80af2d22b66aab89e7a joe hick started the discussion Jascayd interactions in the forum Navigating Society https://pulmonaryfibrosisnews.com/forums/forums/topic/jascayd-interactions/ Wed, 21 Jan 2026 00:13:59 -0600 Jascayd interactions

I take diltiazem and a BP med and seem to be having difficulty with jascayd.

Anyone else with this problem

]]> b3e948bd3bf03647792afb15a02b8978 joe hick replied to the discussion Tell me your questions about Jascayd (nerandomilast) in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/tell-me-your-questions-about-jascayd-nerandomilast/#post-39027 Wed, 19 Nov 2025 14:45:11 -0600 Reply to Tell me your questions about Jascayd (nerandomilast)

I asked my dr, she approved it and I have it in my hands now. Took about two weeks and it cost me nothing.

Was leaving on vacation the day before I received it, so will start it in a few days

]]> 55c416eca67f160d538745466a416ade joe hick replied to the discussion Passing along what is working for me. in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/passing-along-what-is-working-for-me/#post-29828 Sat, 04 Sep 2021 02:23:58 -0500 Reply to Passing along what is working for me.

Started just 5 days ago and finding pain in my liver area. I do have liver disease,  but was going to have it monitored by blood tests. I’m going to stop it now and infom the Dr. I guess what’s worse liver disease or lung disease?

]]> 0c9ea39baf77b5a6b63ea5f5c8947fad joe hick replied to the discussion when rejected for transplant in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/when-rejected-for-transplant/#post-29782 Wed, 01 Sep 2021 17:40:05 -0500 Reply to when rejected for transplant

I’m in the exact same situation. I have to assume no one is going to do all two problems, and /i don’t mean at the same time. I guess I’m screwed.

]]> cb61377b45255791e8e0536b22fff1e9 joe hick replied to the discussion Passing along what is working for me. in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/passing-along-what-is-working-for-me/#post-29781 Wed, 01 Sep 2021 17:34:19 -0500 Reply to Passing along what is working for me.

Started taking OFEV a few days ago. No issues so far, but have a liver disease that needs to blood tested once a month. I’m hoping I can continue.

]]> 2c661a887394fa5da182956b24470f1f joe hick replied to the discussion Combo meds in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/combo-meds/#post-29275 Wed, 21 Jul 2021 12:57:29 -0500 Reply to Combo meds

Is there one med better than the other in regards to ofev and Esibriet?

]]> 53091cc992ddf3fe8d6c9d27b018f843 joe hick started the discussion Combo meds in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/combo-meds/ Wed, 21 Jul 2021 02:28:42 -0500 Combo meds

Can TYVASO be taken along with ofev?

]]> a0215d3364a04ea85ab6938e711cc0d9 joe hick replied to the discussion Update on EGCG Green Tea Extract + Pulmonary Fibrosis Project in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/update-on-egcg-green-tea-extract-pulmonary-fibrosis-project/#post-24919 Fri, 10 Jul 2020 16:02:26 -0500 Reply to Update on EGCG Green Tea Extract + Pulmonary Fibrosis Project

Can anyone give me the exact name of the Green Tea Extract used in the study??

Joe Hick

]]> 6a75817fd0c1bdada4a6dc038cb92264 joe hick replied to the discussion EGCG Green Tea Extract in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/egcg-green-tea-extract/#post-24205 Fri, 01 May 2020 17:38:01 -0500 Reply to EGCG Green Tea Extract

I bought Nusapure off of Amazon. The recommended dosage from them is 2 capsules per day, and they are 1000mg. I am going to stay with the one capsule per day. I just started this a few days ago, so nothing to report as of yet, by the way they are made in the USA.

What I am impressed with is that this study was reported in the, New England… Read more

]]> 59c10d638caa9e5daabf494f008c29ee joe hick replied to the discussion EGCG Green Tea Extract in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/egcg-green-tea-extract/#post-24185 Thu, 30 Apr 2020 15:18:14 -0500 Reply to EGCG Green Tea Extract

Started taking it yesterday. 1000 mg to start, than, 2000 mg. We will see.

]]> 748a4d7c01ad152b7cc6d69a9495062d joe hick replied to the discussion Possible target found for idiopathic pulmonary fibrosis treatment in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/possible-target-found-for-idiopathic-pulmonary-fibrosis-treatment-2/#post-24166 Tue, 28 Apr 2020 15:46:29 -0500 Reply to Possible target found for idiopathic pulmonary fibrosis treatment

I guess my question is with this disease and the known eventuality why wouldn’t someone with advanced IPF be willing to  test some of these drugs. I know I would sign over any liability to anyone or Co. that was willing to use me, knowing I had little options.

]]> 257b2629a2b48b092142ce586049cf45 joe hick replied to the discussion COVID-19 and Lung Disease in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis https://pulmonaryfibrosisnews.com/forums/forums/topic/covid-19-and-lung-disease/#post-24100 Wed, 22 Apr 2020 16:05:56 -0500 Reply to COVID-19 and Lung Disease

My hope and as I have mentioned on the forums here is, with all the research being done on covid-19 it will lead to some type of treatment or cure to PF.

 

]]> 79113dab83dabb80a710c0d6a666d95c joe hick replied to the discussion New treatments in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/new-treatments-2/#post-23889 Thu, 09 Apr 2020 17:33:09 -0500 Reply to New treatments

Let’s hope, your right. Unfortunately it has to be at the expense of others. The only thing I am worried about are those who will suffer now from fibrosis due to covid -19.

]]> 7dd375444d45984416800906e4410eb3 joe hick replied to the discussion New treatments in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/new-treatments-2/#post-23861 Tue, 07 Apr 2020 16:36:08 -0500 Reply to New treatments

I think this forum is a good start by getting the word out. It will tend to have an osmosis effect in the pulmonary research field. We all need to advocate for a cure for this disease.

]]> 4cbe831e9e10d577b57e188f3feda44f joe hick started the discussion New treatments in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/new-treatments-2/ Mon, 06 Apr 2020 15:25:30 -0500 New treatments

With the advent of this horrific virus and the attacks on the pulmonary functions. The multitude of testing and investigative research around the world it would only lend to possible cures for PF. Let’s hope there is some good that comes out of something so bad, for both, stricken with these two horrible diseases.

]]> 8ae53d590b39a026814b444b60d543ab joe hick replied to the discussion New treatments in the forum Research and Development https://pulmonaryfibrosisnews.com/forums/groups/research-and-development/forum/topic/new-treatments/#post-23099 Sun, 23 Feb 2020 14:08:31 -0600 Reply to New treatments

Thanks Mark. Looking for that study that will come up with a cure. Just hoping and praying

]]> 3a85529b93951b42085307f75b17f087 joe hick started the discussion New treatments in the forum Research and Development https://pulmonaryfibrosisnews.com/forums/groups/research-and-development/forum/topic/new-treatments/ Tue, 18 Feb 2020 14:00:43 -0600 New treatments

Are there any know studies going on for the cure of IPF? If so where can I investigate?

]]> 7ce1494ca3a1266b282d5c526b8859b2 joe hick posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/17884/#acomment-18106 Mon, 17 Feb 2020 15:50:09 -0600 Thank you. Look forward to any news on this research.

In reply to - joe hick posted an update Looking for info on, N117? ]]> d548a6d14cb442ba06fe505e88d826a1 joe hick posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/17884/#acomment-18046 Fri, 14 Feb 2020 23:20:01 -0600 Thanks. Will look forward to any info on what seems to be a promising drug.

In reply to - joe hick posted an update Looking for info on, N117? ]]> 29ccca7ddf29f5888567138eed6365e7 joe hick posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/17884/#acomment-17896 Mon, 10 Feb 2020 15:56:36 -0600 Another source for this.
https://www.prnewswire.com/news-releases/rx-globally-patented-non-steroidal-nasal-spray-for-all-lung-diseases-including-pulmonary-fibrosis-cf-copd-unmet-needs-with-no-known-side-effects-that-can-also-be-used-to-deliver-antivirals-antimicrobials-insulin-and-other-dr-300986730.html

In reply to - joe hick posted an update Looking for info on, N117? ]]> 59e5b3ca0a32d89f426e6cba4d2c7e73 joe hick posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/17884/#acomment-17895 Mon, 10 Feb 2020 15:54:59 -0600 Sorry the trial # is N115, and I have attached a link to what I have on it. Any info about this would be… Read more

In reply to - joe hick posted an update Looking for info on, N117? ]]> dba3373711bcf18933f30d2008c53b20 joe hick posted an update: Looking for info on, N117? https://pulmonaryfibrosisnews.com/forums/activity/p/17884/ Mon, 10 Feb 2020 12:50:45 -0600 Looking for info on, N117?

]]> 7 cee3ba72a62e4c191b3c7bec47714b59 joe hick posted an update in the group Research and Development: Just read about the following. U.S. Phase III […] https://pulmonaryfibrosisnews.com/forums/activity/p/17869/ Sun, 09 Feb 2020 14:15:53 -0600 Just read about the following. U.S. Phase III Clinical Trials with Idiopathic Pulmonary Fibrosis Patients, our N115 Rx. Does anyone have any insight on this trial. It sounds very promising?

]]> 0 15cee5096ae2a6094ba4ffd768ea0190 joe hick joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/17868/ Sun, 09 Feb 2020 14:14:43 -0600 0 5bb27ceca1cd4d5b4e1af56322e1d7d5 joe hick became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/17845/ Sat, 08 Feb 2020 14:54:50 -0600 1