Forum Replies Created

  • Interesting about B cell. I have been helping my brother research about Ebstien Bar virus and guess what EBV favorite cell to lay latent in is the B cell. That was one of the worries with the vaccine that it would take out B cell along with EBV. I’m going to get his thoughts on this and post back if there is a possible relationship to circadian clock of cells and EBV. PS I was sleeping less than 4 coughing constantly now sleep with raised head hospital bed I go 12 hours or more and I’m a happy camper I can’t take the no sleep.

     

     

  • John Mark

    Member
    January 26, 2020 at 8:01 pm in reply to: Viral Infections Raise Risk of IPF But Not of Disease Worsening

    @jmsutt

     

    Janice, I pretty much do everything you do except recently my little woman made me ask my customers if they had been sick. It was awkward but it paid off, he had been sick and was still on medication! Also last year my little woman started getting a soar throat and cough, I immediately went to our lake cabin but it was too late. It was the flu, I barely survived. That was in late April of last year, my brother informed me that he read an article that you need to take the flu shot again in 3months during season. That after 3 months scientists have found your antibody titer tests to be extremely low against the flu. I talk to my pulmonologist he said that they used to take flu shot twice all the time then the FDA said it wasn’t necessary. I was in ER last week and ask the head nurse about it she said sure she did every year like it was normal thing. We’ll I must be living in cave, cause before my brother told I had never heard that? But both my brother and I had flu shot early in sept and got the flu in April. So I’m all in for two shots especially now that all my docs insist on seeing them  during flu season. Normally, I will schedule no visits during flu season and if it’s still going strong late I kick them out further.But now ipf causing something with heart I can’t mess according appointments.

     

     

  • John Mark

    Member
    November 21, 2019 at 9:40 pm in reply to: Oxygen Questions

    Hello everyone! Mark thanks for telling your lpm flow under exertion,  I was starting to worry when I saw all these 2 and 3 lpm flow all the time.

    I have an aggressive form of IPF and went through all the oxygen system pretty rapidly. I now use 10 lpm Invacare machines for around house and substitute with bottles if I do any real work or go outside.   My doc told me to stay comfortable and keep 02 level above 90 and that I could not OD on Oxygen with my condition of  IPF, so under exertion I run 10 to 12 lpm. I told him sitting around I could turn down to 3 or 4  or nothing and stay above 89 maybe, he said don’t do it for two reason one you will forget to turn it back up and secondly you will be starting at a low saturation point when you start to move. So I  set around with 8 to 10 lpm flow and 98% oxygen when  I start to move it drops very quickly like he said and like he said when I try to turn down I forget to turn up. In my case if  drop to low I immediately go into coughing fits and  sweats and have to sit by fan to regroup. Does any else do this when they go too low on oxygen?