John L

Is there a brand or preference of the ginger tea?   thanks….

Hi Cindy…welcome!  I have been on Ofev about 2 months now.  I struggled also trying to find the right food to eat when taking my Ofev.    I believe everyone is a little different but for me I try to eat something that will absorb the medication both in the morning & evening.  For breakfast, I can get by with an english muffin & hard boiled egg o…[Read more]

Marianne…Yes, I am retired.  I am on Medicare, & BC & BS as a secondary, also get a pension & I was approved.  I was surprised because you have to tell them your complete income when applying.  My co-pay was what they covered.  It’s worth a shot to call them & speak to one of their representatives……I know there are other places too that off…[Read more]

I know there are other Agencies besides Healthwell Foundation that offer support too!  Healthwell was suggested to me by Open Doors & by my Specialty Pharmacy….

Thanks Charlene….still doing ok with the Ofev & side effects are minimal.  Choosing the right food to eat has been somewhat of an adjustment & a learning experience for me by trial & error.  When something upsets my stomach, I make a note not to eat that again with the meds….only once with eating fried chicken it left me feeling some stomach d…[Read more]

Good morning….Being relatively new to this, regarding blood work to check liver functions, I can only share my experience thus far.   My guess is each Doctor might have a slight different approach monitoring your blood.  My Pulmonologist had me take a blood test prior to even starting the Ofev.  Then wants me to take 1 test per month for 6 mon…[Read more]

Healthwell Foundation  # 800-675-8416    This place picked up my co-pay for the Ofev.   They have funds to assist with meds.  I also have Medicare & BC&BS as a Secondary Insurance.  I didn’t think I would qualify & they approved me to pay the co-payments.   Worth a shot….

Good luck to you with the rehab @Marianne…..keep on keeping on

Some information I was told by a Clinical Educator for Ofev on Friday which was not easy to swallow is that…it takes “10” years for a new drug being researched for IPF to go from studying with mice to humans!    Anyone else have any info pertaining to this?  Anyone know of anything new that might be coming out to treat IPF in the next couple of…[Read more]

Good luck Marianne….keep us posted

Thanks Mark….we will see how it unfolds.

Good luck Marianne…Hope they can help find a way to get you the Ofev….

Thank you Marianne…..

Thank you both Charlene & Mark for your advice & suggestions & thank you both for all that you do here with these forums.  It has been a learning experience for me & you’ve both been very helpful.  I will keep you posted as I go along…..

Just coming to terms with this IPF diagnosis & I am already seeing how my family & friends are responding to my daily struggles.  I really don’t think they fully comprehend the effect this is having on me physically, mentally, & spiritually.  I get the impression that because I somewhat might look good on the outside, that everything is ok with m…[Read more]