@kristina
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Kristina grilo replied to the topic Sodium Pyruvate in the forum Clinical Trials 2 days, 10 hours ago
I bought some on amazon, but it’s a powder. Now I have to purchase a nebulizer…..not sure if it’s going to work…also I’m a little afraid of trying it, so i have not bought the nebulizer…..yet..
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Kristina grilo posted a new activity comment 1 week, 2 days ago
Thanks Denny…I’m a little skeptical, especially considering the $900 price tag….if they work it would be awesome, if not …..and I would have to take at least 3 months worth….I need to think more througly and unfortunately I can’t find anything on the internet about wei, which is a red flag for me, just their own referrals…
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Kristina grilo replied to the topic Is this what depression feels like? in the forum Living with Pulmonary Fibrosis: 50+ 3 weeks, 2 days ago
I am so sorry….do you have a Bible you can read? I find that my faith really helps a lot when all seems lost. Please don’t give up, God loves you!
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Kristina grilo posted a new activity comment 3 weeks, 3 days ago
Yes, I am very interested in taking the product. I know they’re expensive but our health is worth it. OK, let me know the results of your ct and then order this stuff. Thank you Dr. Hall
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Kristina grilo posted an update 3 weeks, 3 days ago
@caneelbay1 I’ll go with you, lol..I’m not joking though…I don’t think I have 2 or 3 years to wait for the medication to be approved here. I looked online to see if i could order it but so far no go. Also thinking about Steve Dagoo, he’s in the Philippines, maybe it would be easier for him to purchase it over there and mail it to us. I’m also…[Read more]
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Kristina grilo posted an update 3 weeks, 3 days ago
@drandyhall I hops things are good with you. I was hoping you could let me know if the Wei herbs are helping you at all. I asked the same from Steve Dagoo and he said that yes, they are helping him. I would also like to hear your opinion , please ! Thank you Dr. Hall
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Hi Kristina! Yes, I know that the Wei products have been very helpful for Steve. I have been taking them and my cough is certainly better, so it’s got to be doing something! With the research that I have done on the Wei products I have read that many times it will actually reduce the fibrous tissue in the lungs and that is the main reason that…[Read more]
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Yes, I am very interested in taking the product. I know they’re expensive but our health is worth it. OK, let me know the results of your ct and then order this stuff. Thank you Dr. Hall
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Ok, I’ll be in touch as soon as I get my results.
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Hi Kristina,
I just got my CT scan results. I was hoping that there would be less fibrosis, but there is no change in that. There was however an improvement in that there is less ‘air trapping’. The best news of course is that it’s not worse.
So, if you provide me with your phone number, I will call Casandra at Wei labs and I will have her call…[Read more]
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Kristina grilo replied to the topic Sodium Pyruvate in the forum Clinical Trials 3 weeks, 4 days ago
Can we not order it online from a Chinese pharmacy? I’m going to see if I can…
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Kristina grilo posted an update 3 weeks, 6 days ago
@steve-dragoo
How have you been? You haven’t posted in a while, I hope things are good with you. Are the wei herbs helping you while you’re over there in the Philippines? Hope to hear from you soon….-
Hi Kristina – I have talked with some via email, Skype, or PM on the forum board. So thanks so much for asking. The herbs help a lot. Since coming here I have not used O2 at night because I don’t have a concentrator yet and had only a couple very minor issues. Walking stairs is easier, breathlessness is far less and a lower heart rate…[Read more]
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Kristina grilo started the topic Starting esbriet in the forum Diagnosis Information and General Questions 1 month, 1 week ago
My lung function is at 61% and my DLCO is 54. I have lung nodules and my pulmonologist wants 2 ct’s done with contrast….one to check for cancer and another for blood clots…..the tests differ from each other, that’s why he wants 2. I’m not on oxygen, yet, and he wants me to start on esbriet….I have no questions, just want to vent…[Read more]
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Kristina grilo posted an update 1 month, 1 week ago
@gilberta719 cut out bread, pasta, white rice and anything with sugar and see how fast you will lose the weight….eat nothing but chicken, fish and some beef with tons of vegetables….
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Hello Kristina, you suggestions are totally on point. I have always been told losing weight and being is 80-90% diet and the rest exercise. Those food items if you can eliminate or downsize them, the person will experience a drastic weight loss. Thank you again, Mark
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Kristina grilo posted an update 1 month, 3 weeks ago
@steve-dragoo , Thanks Steve, for responding about the Weii products…..I have been reading everyone’s posts for a few months and am learning a lot…I too take serrapapetase, I take it in the middle of the night, 780000 SU’s , and a whole bunch of vitamins during the day…..also laser and Chinese herbs..lol..
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Hi Kristina,
Apologies – I did not see your question from a couple of days ago regarding Wei. Since I have no laser here in the Philippines, I decided to start Wei about mid-May. When I arrived in the Philippines I was doing good in the afterglow from the laser and then that started to wear off. At that time I thought Wei was not helping much…[Read more]
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Kristina grilo posted an update 1 month, 3 weeks ago
@steve-dragoo how are the Wii herbs working out for you? I looked into them and they are pricey, however, if they work then…..
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Kristina grilo replied to the topic just want to share some of my experience in the forum Canadians Living with Pulmonary Fibrosis 1 month, 3 weeks ago
Steve, how are Wii laboratories herbs working for you?
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Kristina grilo and
Andrew Hall DC are now friends 4 months ago
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Kristina grilo replied to the topic Recently diagnosed with IPF & Honeycomb Lung in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months ago
I too live in Florida, Melbourne area….where are you?
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Kristina grilo posted a new activity comment 5 months ago
I’m in Melbourne, Florida…how about you?
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Sarasota County…gulf coast
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Kristina grilo and
John L are now friends 5 months ago-
I’m in Melbourne, Florida…how about you?
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Sarasota County…gulf coast
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Kristina grilo joined the group
Research and Development 5 months ago -
Kristina grilo replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 2 weeks ago
I’ve been doing the laser treatment, I’m on number 16. When I first started, my 02 was 94, now I’m at 96, 98. I have not done a PFT because I dont have health insurance and the test is 700 dollars, I will do one if needed but for now I don’t see the reason. I do have the CT scan that was used to diagnose my IPF, will do another one in a few months…[Read more]
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Kristina grilo replied to the topic Laser Therapy Part II in the forum Pulmonary Fibrosis Awareness & Advocacy 6 months, 1 week ago
Hello everyone…..before starting laser theraly, my oxygen level was at 94, after 7 treatments with laser my oxygen is at 97 and 98. I consider that an improvement . Also, I’m not so out of breath and I also feel better. Placebo effect? I don’t think so. I have not gone to a pulmonologist to do a lung test, still waiting on that, but I FEEL…[Read more]
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Ok, I’ll be in touch as soon as I get my results.
Hi Kristina,
I just got my CT scan results. I was hoping that there would be less fibrosis, but there is no change in that. There was however an improvement in that there is less ‘air trapping’. The best news of course is that it’s not worse.
So, if you provide me with your phone number, I will call Casandra at Wei labs and I will have her call…[Read more]