Forum Replies Created

  • Kevin collier

    Member
    December 9, 2023 at 9:29 am in reply to: New to IPF

    I do not where you live, but if you can get to a Cleveland Clinic I would recommend it. I recently had an appointment and before I left atthe end of the I had ALL of the results of the tests, including CT scan, chest Xray , pulmonary tests (3), and multiple blood tests. At the end of the I met with the pulmonologist and reviewed all tests.

    This is what I have been experiencing for 3 1/2 years. I choose to travel 120 miles to and from for this care.

    Take charge of your care!!

  • Kevin collier

    Member
    August 22, 2023 at 9:01 pm in reply to: OFEV and Surgery

    I recently had an arterial bypass in my right leg, I cut out the morning dose.

  • Kevin collier

    Member
    August 22, 2023 at 8:55 pm in reply to: Saracatinib

    `I also would like to know about any side effects and dosage.

  • Kevin collier

    Member
    August 15, 2023 at 10:33 am in reply to: Best Lung Center in Northeast USA

    I will be 75 in October, diagnosed in January 2020 and travel 123 miles to Cleveland Clinic, and was recently accepted in there transplant program.

  • Kevin collier

    Member
    August 15, 2023 at 10:33 am in reply to: Best Lung Center in Northeast USA

    I will be 75 in October, diagnosed in January 2020 and travel 123 miles to Cleveland Clinic, and was recently accepted in there transplant program.

  • Kevin collier

    Member
    April 21, 2022 at 2:20 pm in reply to: Telling your family

    I was diagnosed February 2020 after about three months, after I accepted what it meant, I just sat down and called each of our children and told them. I said that for now I was ok but this was progressive and would at some point would probably need help. That was the hardest part because I always was the one to give the help and assistance, I believe this one of the hardest part of IPF.

  • Kevin collier

    Member
    June 22, 2022 at 6:00 am in reply to: Zinc in the Role of Lung Fibrosis

    It is best to take your zinc with 4-5ounces of Tonic water the quinine in the tonic water helps the cells absorb the “large”zinc molecules.