Forum Replies Created

  • Lesley

    Member
    August 25, 2020 at 6:20 pm in reply to: Exercise Routine

    This is really good.especially the controlled breathing exercises. I have no access to Pulmonary Rehab in my part of NZ, so will add these to my regular Aquarist classes. Anything I can do to keep as fit as I can with this wretched disease.  Thank you for sharing ?

  • Lesley

    Member
    October 8, 2019 at 2:10 pm in reply to: Aloha from Hawaii

    Hi from N Z..so glad you made a dream come true. Have the best of times.

  • Lesley

    Member
    September 3, 2019 at 6:18 pm in reply to: PFTs and a Reduction in DLCO Number.

    Hi from New Zealand! I have found this group of great interest and as there are no support groups in or near where I live -I have followed all the sharing and knowledge avidly.  I am 2 plus hours from respiratory clinic held in the general Hospital,  currently having 6 monthly check ups with x-ray and respiratory tests, then a chat with physician. This is 3 years with PF for me, and latest scan shows “stable”, which I will be discussing at next check up in a month. I do my best to keep fit lung-wise. Walk a few kms, do a circuit at the gym twice a week, swim and cycle when weather permits. I  am on no mess so far, though next step I know would be immunosuppressive..?..hoping not for sometime yet. Trying not to overthink the future..I am 70 this year, and still do reception at dental practice 4 afternoons a week. I just try your “carry on as normal”..until something changes. Best regards to all with this wretched disease.