Lindas
Forum Replies Created
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Hi Jill ( @jill-tanner ) thanks for bringing mouth pain to the forum. I have experienced tooth pain and mouth pain. Dentist & Dr. found nothing. I was recently in the hospital with pnemonia and found out that foot and hand tingling and itching was due to oxygen problems. I am on 24/7 but the extremities weren’t receiving enough. They prescribed gabapentin in a low dose and cleared that up. It also seems to relieve the mouth pain. Please let us know anything you find out. Good Luck
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Hi Charlene, Sorry about your current difficulties. Thanks for this forum I have learned so much. I was just searching humidity and PF yesterday. My symptoms match yours. Even staying in air conditioning and still have symptoms. Appetite problems have bothered me for awhile now. Spicy foods are not for me except occasionally. Been on Oxygen 24/7 since 2016. I am currently at 4 liters. Not on either of the meds. PF diagnosed in 2016. Was on oxygen for 6 months in 2014. I stopped it because I thought I was OK. Developed heart failure after chemo in 2011. Another cancer 2013 caused severe skin damage to skin inside and out. More than 1 Dr. told me I had a lot of.scarring in my lungs. No mention of PF. Heart Dr. sent me to lung Dr. Food is not my friend. Shortness of breath is the culprit. I eat small portions and snack through the day. This works for me right now. Sorry this is so long. Thanks Charlene and all of you for your help.
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Hi Cynthia, I also have throat problems. Ppost nasal drip was causing coughing when I went to bed. That was allergy and was cleared up with antihistamines. My Dr. told me to try 2 or 3 until I found one that worked for me. That was years ago and still have to take it. I also have throat clearing problems when vertical. Thick mucous seems to accumulate. Did not have this until I found out I have PF. Also sleeping with 2 pillows helps post nasal drip which I developed long before PF.
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Hi Patsy, thank you for the tip
I also have mouth pain from acidic drinks. Looking forward to a possible solution. I do miss pineapple!
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Lindas
MemberMarch 8, 2019 at 11:41 am in reply to: Tips for Making A Shower Easier with Pulmonary Fibrosis.Thanks Charlene for the list of shower
tips. I have had exhausted days after showering. I sit down. But, have been leaving my cannula outside the door. Can’t wait to bring it in with me! The fan tip should help too. Thank you for your help.