[Luciane Horton]

As I read the post, my eyes are filled with tears..it is very difficult to process my feelings..

On one hand, I am happy for people, older or younger alike,  who has this horrible diseases and are able to find donors and start again their lives. On the other hand, I get so frustrated because I have a 27 year old waiting for the call.

We, as a family, have not even crossed the first line of the first transplant. Everything is abstract to us. We attended seminars, we read forums and participate in support groups but the truth is we don’t know what is ahead of us.

At this time, my son has already decided..he will have one transplant and we will take it and run with it as long as we can. But gain, we are speaking without knowing what is ahead of us..

IPF sucks that is the truth!