[Lynn Schmitt]

The receptionist told me it cost $45 for 9 minutes. I will ask if I can have an extra 1 minute and pay $50. Then I will try to go again on Wednesday. Thursday should show if there is any improvement. I am excited to try it!

Thanks for the information.

Lynn

[Lynn Schmitt]

To Charlene, Dr. Hall, Terry, John, Steve and anyone I have left out.
I have an appointment with a Physical Therapist on this coming Monday to try the laser. It is a class 4, K laser. I have chronic hypersensitivity Pneumonitis, but if it stimulates the lungs and helps with oxygenation, count me in. I have am appointment with my transplant surgeon next Thursday, and I will be having the 6 minute walk test and breathing rests. We will see if there is any improvement since the last time 6 months ago. Dr. Hall, do you think I should have more than 1 treatment before I see the doctor?
Can you have a treatment every other day, or will it be harmful? The PT will know all this, but I want to know now, if possible.
Thanks, Lynn

[Lynn Schmitt]

Hi, Charlene,
I cannot find Megan’s reply concerning laser therapy. Could you send me the information?

[Lynn Schmitt]

John Styles, I am interested in the article by Dr. Hall about cold laser. May I ask where you live and who performed your therapy?

[Lynn Schmitt]

Have you only had one laser treatment? Do all chiropractors use cold lasers in their therapy? This is Lynn (Dogwood)

[Lynn Schmitt]

Hi, Charlene, Robin, Kate & Mary!

I have not responded lately because I am waiting for my appointment with my doctor at U. Of Ky. He is really the transplant doctor, but I WANTED TO GET MY FOOT IN THE DOOR, JUST IN CASE.
I have put any plans on hold for now. I am doubting everything, I guess. I am going to ask the doc for the special blood test for HP, because My allergy to down feathers was by process of elimination. And I won’t even consider starting a Remodeling project until I find out. If I can’t get the test here, I will probably make an appointment with Duke. We have a condo in Wilmington, so it would be no problem to stay for a few days.
I just feel so helpless and hopeless. It seems as if my O2 levels have dropped, but I have had some type of bug for the past week. I will be getting all the breathing tests and the walk test on the 24th @U.K. so I will know a little more then, hopefully! I also want to see my first and last ct scan and actually look at my scarring.
I will be back in touch afterwards, but keep me included in your posts.
I have learned so much from this site.
Thank you all, and God bless,

Lynn

[Lynn Schmitt]

This is Lynn. (Can’t remember my login details)
To all who have responded and Robin. I am very curious about the honeycombing vs. other scarring. Also, I will see my U. Ky. Doctor on 1/24. Should I ask for extensive blood tests to find the allergen, go for allergy testing, or go With The premise that down feathers is the culprit?
I looked up Napricin, and it does affect the lungs in certain people. So much to learn.
I am living in Lexington, Ky. now, but planning on moving back to my home in Paintsville, Ky.
I was planning on remodeling there (master bed & bath downstairs), but now I am second guessing until I get testing on my home.
I am in a real pickle. Any advice is appreciated!

[Lynn Schmitt]

Robin, this is Lynn, AKA Dogwood.  I would appreciate any information you have.  My email is [email protected].

Thanks so much!

Lynn

[Lynn Schmitt]

I was diagnosed with hypersensitivity pneumonitis in 2013.  I was put on prednisone for 5 months, but my dr. offered no further tests.  I was blissfully ignorant and happy I was cured.  In 2017, after my breathing problems returned, I saw several doctors.  The important information I gleaned from one – my scarfing was in my upper part of my lungs, and IPF scarring occurred in the lower.  I did not start getting better until my last dr. determined I was allergic to down feathers.  Since getting rid of all down items in my house, my breathing tests have improved.  I am on 10 mg. Prednisone and Cellcept.  I also walk on my treadmill daily, if possible.  Hope this helps,

[Lynn Schmitt]

Hi, Robin,

I have been diagnosed with HP for several years ago. I was never totally tested to see what the causative agent was, but after going to Cleveland Clinic and  University of Ky. Hospital, I still did not know what was causing the scarring.  I went to Baptist Pulmonary in Lexington, Ky. and after more blood work and seductive reasoning, my doctor is positive it is from down feathers.  I have gotten rid of all the down, and my breathing tests have improved, but I am still on Oxygen with activity and sleeping.  (Since 2017).  I walk on my treadmill every day or go to pulmonary maintenance to exercise.  I did not know that scarring was not permanent.  Should I go to JH for a second opinion?  I am going to check out  industrial hygienist and see if there are any in this area.

I know that much research is being done on drugs to actually remove the scarring, but nothing definite yet.  I would appreciate your imput.