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  • This sounds promising. I have HP, and I have scarring.

  • Lynn Schmitt

    Member
    February 12, 2019 at 8:07 pm in reply to: laser therapy

    Dr. Hall, in case my message gets cut, my e-mail is [email protected].
    The chiropractor at Today is Dr. Leo Boisvert. He did not treat me, just spoke. The young man with whom I consulted was named Lee or something similar. He claimed that when they programmed the laser and put in type of tissue (lung) it was set to 5 watts
    Thank you for your help,

    Lynn

  • Lynn Schmitt

    Member
    February 12, 2019 at 8:06 pm in reply to: laser therapy

    Dr. Hall, today Chiropractic has an e-mail address. [email protected]. Perhaps you can e-mail him your essay and reference me.
    Thanks,
    Lynn

  • Lynn Schmitt

    Member
    February 12, 2019 at 11:56 am in reply to: laser therapy

    Hello Dr. Hall,

    As usual, I am in a quandary…I went to Today Chitopractic this morning. They praised the K Lazer. HOWEVER, the person I first consulted with insisted that they only use 5 watts on soft tissue. He said it went deeper and spread out. I went ahead and had one treatment, but it did not feel warming at all. I hope it warmed down deep in the lung tissue. I only paid for one visit @ $50. I could get 5 treatments for $225-$45 per treatment, or 10 treatments for $400-40 per treatment. I made an appointment for tomorrow, but I wanted to see what you recommended. I kept insisting that you said 10 watts, ut they insisted that is their protocol. WHAT DO I DO?
    Sorry for being so troublesome,

    Lynn

  • Lynn Schmitt

    Member
    February 11, 2019 at 6:09 pm in reply to: laser therapy

    Dear Dr. Hall,
    I have a consult with Today Chiropractic tomorrow. I need to find out the treatment fee and the protocol of treatment. Thank you for the referral.
    My PT is named Steve – how did you know?
    I will respond with the results, if I have a treatment this week!

  • Lynn Schmitt

    Member
    February 7, 2019 at 8:08 pm in reply to: laser therapy

    Hello, all:

    I visited my doctor at U of K today. I had breathing test, chest x-ray and blood work. Everything is stable. No improvement, but no deteriorating either!

    Dr.Hall, when you get the time, would you please see if there are any chiropractors in this area (Lexington, KY). I am not going back to my PT because I think you are right. He is not following protocol. I am going to call and tell them I can’t afford to keep going. Please contact me if you find anyone That you would recommend.

    Nevertheless, I am pleased that I am staying stable.

    John, do you think maybe you received such good results because you had interstitial pneumonia, as opposed to pneumonitis? Just a thought.

    Thanks to everyone on this forum. It is so nice to be able to correspond with people who know what you are talking about!

    Regards, Lynn

  • Lynn Schmitt

    Member
    February 6, 2019 at 7:53 pm in reply to: laser therapy

    Hey, Dr. Hall, John, Charlene, etc all,

    I like this physical therapist, and I think he is doing his best. However, he has never used the laser for treating IPF or HP. I think I need for Dr. Hall to research chiropractors in Lexington, Ky because I cannot continue to pay $270 per week. I can swing $90, if this helps at all. I will be in touch after my appointment tomorrow, then we will be out of town for the weekend. I have felt short of breath today, but that may be anxiety kicking in. I am always nervous before appointments. Thank you all for your support and advice. Lynn

  • Lynn Schmitt

    Member
    February 6, 2019 at 4:21 pm in reply to: laser therapy

    I don’t think this laser is working for me. I cannot see any improvement. Tomorrow are my tests.

  • Lynn Schmitt

    Member
    February 5, 2019 at 5:31 pm in reply to: laser therapy

    Andy,
    The cold laser fee is $45 for a 9 minute treatment. I have 2 each day. Tomorrow will make $270. If this is excessive, please find someone else certified to give the treatments. I was resigned to maybe paying $90 per week. But I really can’t afford to pay $90 per day! I don’t feel any better yet.
    Let me know what you think.

    Lynn

  • Lynn Schmitt

    Member
    February 5, 2019 at 4:19 pm in reply to: laser therapy

    To Charlene, Andy, etc all,
    I would like to hear from all participants whether or not you have scarring. Maybe this makes the difference in how well the laser therapy works. Any ideas on this?
    Dr. Hall:
    Also, I had two treatments on my back side today (9 minutes each). Tomorrow we will do the chest. I will have spent $270 after tomorrow. If there is no improvement in my walk test on Thursday, what would you suggest ? I don’t want to throw money away on a lost cause.

    Kind regards, Lynn

  • Lynn Schmitt

    Member
    February 4, 2019 at 8:57 pm in reply to: laser therapy

    Dr. Hall, as I told Charlene, I had (2) 9 minute treatments
    On my upper and lower left side. Tomorrow we do the same to the right. Do you think this is too much?
    Please reply – my appt is tomorrow @ 12 noon.

  • Lynn Schmitt

    Member
    February 4, 2019 at 7:13 pm in reply to: laser therapy

    Dear Charlene, I have sent several posts recently, and they have not shown up on this thread. Also, I asked Andy, John and Steve if they were on any oxygen, but none replied. Am I doing something wrong?

  • Lynn Schmitt

    Member
    January 30, 2019 at 6:52 pm in reply to: laser therapy

    Steve, I am in Lexington, Ky. We have an app call Next Door, which covers many neighborhoods. I asked for recommendations for a chiropractor that used the class 4 laser. I found this PT is about 10 minutes from my house!

  • @betty-edwards
    I don’t know the answer to your question, but I would really like to know also. Charlene, can you or some doctor answer Betty’s question about O2 saturation dropping into low 80’s for a couple of hours each day? Please someone respond!
    Thanks,
    Lynn Schmitt

  • Lynn Schmitt

    Member
    February 19, 2019 at 8:29 am in reply to: 7 Health Benefits of Vitamin D

    Steve, I just ordered my K2M7. Here’s hoping it works! I, too, am a little leery of black tea extract until more studies or exact, safe dosage is clear. I am doing my laser treatments with the correct protocol this time. Second one is today. Good luck!

    Lynn

  • Lynn Schmitt

    Member
    February 19, 2019 at 6:35 am in reply to: 7 Health Benefits of Vitamin D

    Good morning, Steve and Charlene!
    Did you read on PF news about the studies on Black tea extract? It sounds promising to those of us with fibrosis. Let me know your thoughts on this. It seems Chinese/holistic medicine is getting attention in treating this disease.

    Lynn

  • Lynn Schmitt

    Member
    February 13, 2019 at 9:24 am in reply to: laser therapy

    Dr. Hall,
    Please don’t go out of your way to call them. If you will just e-mail me your essay, I will discuss it with them.
    Thanks, Lynn

  • Lynn Schmitt

    Member
    February 12, 2019 at 8:07 pm in reply to: laser therapy

    Good evening, Dr. Hall,
    Thanks for replying so quickly. I know it is midday where you are. I always wanted to live in CA., but with all the flooding, forest fires, and now snow storms, I think I will stay here in the Bluegrass. Although if it doesn’t stop raining, we will have to buy a boat!
    I apologize for being so needy, but I am having rotten luck. I never met the main man, Dr. Boisvert, although he spoke in the hallway. I was treated by a guy named Brian, but my consult was with another young man, whose name I can’t remember at the moment – maybe Lee. Although it is a 10 watt laser, he insisted that when they programmed the type of tissue (lung), it automatically set at 5.
    My e-mail address is [email protected]. I do not have hope that they will listen to me. I hope this is not God’s way of telling me to quit trying. I am really discouraged and getting “broker” by the day!
    I am looking forward to reading your information. Thank you so much.
    Lynn

  • Lynn Schmitt

    Member
    February 11, 2019 at 8:56 pm in reply to: laser therapy

    Hi, Terry!
    Thank you for replying. I have a consult tomorrow, so we will compare notes when you begin. I was diagnosed in 2013, but I did not start on O2 until 2017.
    I will keep you updated.
    Have a great week!

    Lynn

  • Lynn Schmitt

    Member
    February 11, 2019 at 10:25 am in reply to: laser therapy

    Hi Terry,
    I have HP also, so please share your results when you get your treatments, please. Do you have scarring?

    Thanks, Lynn

  • Lynn Schmitt

    Member
    February 8, 2019 at 9:27 pm in reply to: laser therapy

    Thank you for your recommendation – I will call first thing Monday. I expressed myself wrongly when I said I did not feel better. I feel good, normal except for tiring easily. I guess I expected to feel this surge of energy, or something similar. You warned me about expecting fast results, but I still hoped I could feel some difference.
    Thank you for all of your help to me and all who are reaching out to you. Time will tell, so I am going to hope for the best! I will let you know.

    Lynn

  • Lynn Schmitt

    Member
    February 8, 2019 at 9:13 pm in reply to: laser therapy

    Hello, Charlene,
    I want to thank you for being so prompt with your replies. I am going to try the chiropractor that Dr. Hall recommends, and hopefully, after a few weeks, I will see some results. We all must keep in touch and rely on each other to find any new solutions or treatments that might work. There were no clinical trials at this time. It is quite sobering to think that you have probably 5 years left to live, at best. Here’s hoping and praying for good results for everyone on our forum!
    Have a nice weekend,

    Lynn

  • Lynn Schmitt

    Member
    February 8, 2019 at 8:47 pm in reply to: laser therapy

    Hey, Steve,
    How do you take Amla, pill form or other means?
    Just curious,

    Lynn

  • Lynn Schmitt

    Member
    February 8, 2019 at 8:44 pm in reply to: laser therapy

    Thank you, John for your imput. I can sit without oxygen, and walk slowly around my house, but need O2 for any exertion. I am going to call the chiropractor Dr. Hall (Andy) recommended and find out if he has treated this before. I can’t afford the pt anymore. I am hoping for some good results! Best of luck to you!

    Lynn

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