Norman Wendth
Forum Replies Created
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I too have had good success with acupuncture. It doesn’t cure, of course, but it reduces symptoms wonderfully. Before I found acupuncture, I had to use a rescue inhaler several times every day. Now I go days without needing it.
I might add that I was a complete sceptic before trying it.
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I too use the Apple Watch to keep track of my oxygen saturation. I find it hard to use for spot checks (one has to stay still, more still than I can usually manage), but it does a great job with readings in the background. I can check the associated app and see how I’ve been doing for the past few hours—especially helpful to keep track of my O2 saturation while sleeping.
Good luck on finding just the right wrist monitor for you.
Norman
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I know this is going to sound weird, but it has worked for me.
I have never believed in acupuncture, but when my spouse found relief from back pain through acupuncture, she pushed me until I gave it a try (mostly to stop her pushing me). To my amazement, it helped! It doesn’t get rid of the phlegm entirely, but it lessens the phlegm significantly and makes life much easier for me.
Like Charlene, I also find eucalyptus helpful for opening airways.
Good luck.
Norman
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We’re all different, but I understand that lower dosages still slows IPF’s progression—just not as much. It’s still worth it.
Also, some of us develop tolerance for the medication more slowly than others. If I were you, I’d still keep trying to reach full dosage, just slowly and cautiously.
Hand in there!
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My experience has been similar. When I asked my pulmonologist about skipping the noon dosage, she said there would be no harm done with the occasional miss but that I shouldn’t make the two-pill regimen a regular thing.
The best comment above was the one that said that we are all different. Adjusting to Esbriet (or Ofev) was hard, but it sounds like it was easier for me than for you. Nevertheless, I have the impression that everyone can develop tolerance; it just takes longer for some.
Keep experimenting with dosages, but only with your physician’s involvement.
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I have been told there is “probably” a genetic link. My grandfather, father, paternal aunt, two paternal cousins, and I all have IPF, so my family believes it.
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I bought a wedge pillow. It’s really helps me now—a lot—but it didn’t at first. Only way to know is to experiment every few months.