Craig Brennan
Forum Replies Created
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The solution I chose to fix the kinking problem with my hose is to run the hose beneath and up behind the machine and reconnect it to the mail and therefore when you pull on the holes it doesn’t stream that connection
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Hi Anne;
I too am in my senior years (74) to be precise, I too am inflicted with IPF and I too have recently been treated for lung cancer with radiation. This recent treatment with radiation has brought on an extreme exasperation to a point that just walking 50 feet has me gasping for breath. With this said I would say you definitely belong in this forum, good luck and always keep faith. -
Thank you all for your input regarding single compared to bilateral lung transplant.
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I have just started the process of being considered for a long transplant I am 73 years old soon to turn 74. I have been reasonably able to do most things while on 3% supplemental oxygen and it has only been a week now that I have lost significant lung capacity. My weight is about average for my age I have remained healthy throughout my life. I’m hoping that I’m approved for a transplant. My question would be if I’m offered a single lung transplant compared to a bilateral lung transplant what is the significant difference? If offered only a single lung what is the possibility of getting back to normal activities such as lawn choirs, garage cleaning?
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Hi Charlene,
It has been some time for me since I actually commented on this site and I just read the above comments regarding traveling with a POC. I have been using an inogen POC since early August 2020 and I am on 3 lts continuously. My issue with this method is it very restrictive in terms of battery life, I am using the battery that was issued with the unit and only get maybe two hours depending on my activity. I was informed that there is a battery that affords you at least double that time but it is around $500 dollars and this to some may be to expensive. To my point I wonder if there might be a way to network and make these type of necessities available throughout this forum. I am sure that there are persons that may no longer need their POC’s and would be willing to make them available at a fair price. Just a thought.
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Thanks Mark and I meant to say I am a 72 year old male, although I think how I stated my age reflects how really older I am.
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72 year old male living in Northern NY
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@mark-koziol
Hi Mark I am a year old male living in Northern NY (I not worried about going to hell as I’M told I already live there) and I was diagnosed with IPF in February 2012. It was by chance they found it after my attending physician ordered a c-scan with contrast as they could see enlarged limp nodes surrounding the lungs . I was living a normal life with yard work, golfing and riding my M/C until February of 2020 when I became short of breath. I was prescribed O2 at 3litres for 24/7 in June of 2020 and from there it has been a slide down for me. In October my O2 was increased to 3litres 24/7 and 4litres if out walking. I am still ambulatory but it’s challenging with the oxygen. I was prescribed OFEV 150 mg twice daily and started the med on December 21, 2020. Initially I had difficulty with the medication and had abdominal cramps with vomiting this stopped after I got control of the 12 hour separation of application of the medication. At first I took the morning one whenever I got up and sometimes this would only allow for 8 or 9 hours between doses, that’s a No No. Once I got into a regiment I was able to tolerate the medication well. I did have an increase in my liver enzymes and my primary physician had me stop my statin medication which helped. To the future and beyond.
Craig Brennan