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MemberSeptember 7, 2022 at 8:39 am in reply to: all us old folks with radiation induced pulmonary fibrosis????
I too am in my senior years (74) to be precise, I too am inflicted with IPF and I too have recently been treated for lung cancer with radiation. This recent treatment with radiation has brought on an extreme exasperation to a point that just walking 50 feet has me gasping for breath. With this said I would say you definitely belong in this forum, good luck and always keep faith.
I have just started the process of being considered for a long transplant I am 73 years old soon to turn 74. I have been reasonably able to do most things while on 3% supplemental oxygen and it has only been a week now that I have lost significant lung capacity. My weight is about average for my age I have remained healthy throughout my life. I’m hoping that I’m approved for a transplant. My question would be if I’m offered a single lung transplant compared to a bilateral lung transplant what is the significant difference? If offered only a single lung what is the possibility of getting back to normal activities such as lawn choirs, garage cleaning?
It has been some time for me since I actually commented on this site and I just read the above comments regarding traveling with a POC. I have been using an inogen POC since early August 2020 and I am on 3 lts continuously. My issue with this method is it very restrictive in terms of battery life, I am using the battery that was issued with the unit and only get maybe two hours depending on my activity. I was informed that there is a battery that affords you at least double that time but it is around $500 dollars and this to some may be to expensive. To my point I wonder if there might be a way to network and make these type of necessities available throughout this forum. I am sure that there are persons that may no longer need their POC’s and would be willing to make them available at a fair price. Just a thought.
MemberFebruary 19, 2021 at 8:32 am in reply to: Ofev Users can Safely take Ofev on a Long Term Basis
Thanks Mark and I meant to say I am a 72 year old male, although I think how I stated my age reflects how really older I am.
MemberJanuary 28, 2021 at 9:01 am in reply to: Ofev Users can Safely take Ofev on a Long Term Basis
72 year old male living in Northern NY
MemberJanuary 28, 2021 at 9:00 am in reply to: Ofev Users can Safely take Ofev on a Long Term Basis
Hi Mark I am a year old male living in Northern NY (I not worried about going to hell as I’M told I already live there) and I was diagnosed with IPF in February 2012. It was by chance they found it after my attending physician ordered a c-scan with contrast as they could see enlarged limp nodes surrounding the lungs . I was living a normal life with yard work, golfing and riding my M/C until February of 2020 when I became short of breath. I was prescribed O2 at 3litres for 24/7 in June of 2020 and from there it has been a slide down for me. In October my O2 was increased to 3litres 24/7 and 4litres if out walking. I am still ambulatory but it’s challenging with the oxygen. I was prescribed OFEV 150 mg twice daily and started the med on December 21, 2020. Initially I had difficulty with the medication and had abdominal cramps with vomiting this stopped after I got control of the 12 hour separation of application of the medication. At first I took the morning one whenever I got up and sometimes this would only allow for 8 or 9 hours between doses, that’s a No No. Once I got into a regiment I was able to tolerate the medication well. I did have an increase in my liver enzymes and my primary physician had me stop my statin medication which helped. To the future and beyond.