Pulmonary Fibrosis News Forums | ARMY PETE | Activity https://pulmonaryfibrosisnews.com/forums/members/peter/activity/ Activity feed for ARMY PETE. Wed, 08 Apr 2026 02:15:50 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 46e75516ef95c777da70b42e1b841ce0 ARMY PETE posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/18792/#acomment-18799 Tue, 17 Mar 2020 20:37:47 -0500 sounds good to me .lol.hate to give up on everything.too many fun things left to do.lol

In reply to - ARMY PETE posted an update @reglois thanks for you reply. I read about your oxygen going down to the 70 s.be aware that its not just a number.every time you go below 88 or 90,it affects every part of your […] ]]> 48e29ce1ab25c255aefcd987e154d9bb ARMY PETE posted an update: @reglois thanks for you reply. I read about your […] https://pulmonaryfibrosisnews.com/forums/activity/p/18792/ Tue, 17 Mar 2020 19:38:36 -0500 @reglois thanks for you reply. I read about your oxygen going down to the 70 s.be aware that its not just a number.every time you go below 88 or 90,it affects every part of your organs which all need that steady flow of oxy.and finally, adjusting the flow and quantety on your own is no bueno!
i just spent a half a day with those folks.its to… Read more

]]> 2 e875b8e9e99c81f3d5bfce763c02ec24 ARMY PETE posted an update: @reglois holy cow . you can do 3,5 kilometers.better get […] https://pulmonaryfibrosisnews.com/forums/activity/p/18782/ Tue, 17 Mar 2020 16:02:39 -0500 @reglois holy cow . you can do 3,5 kilometers.better get on your knees and pray.lol.i am lucky to walk 50 feet.’good luck to you.
peter

]]> 1 438df6019e708bfbbf324debf757b311 ARMY PETE posted an update: @jill-tanner hi jill. well said.going to the va […] https://pulmonaryfibrosisnews.com/forums/activity/p/17111/ Fri, 10 Jan 2020 14:43:08 -0600 @jill-tanner
hi jill. well said.going to the va pulmonary folks is just for them i think.they have few answers and nothing seems to do anything.But i got to keep going every 6 month.lol.
regards , peter

]]> 0 3b73d8c5b591db7851790503a2315cfd ARMY PETE posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/16851/#acomment-16863 Mon, 30 Dec 2019 16:11:39 -0600 thanks for your reply.happy new year to you also
pete

In reply to - ARMY PETE posted an update @hfink2007 hi hans thanks for your message.believe me , i used to be a lot more negative.just ask charlene , lol. now i am just resigned to living my life with the crap that comes […] ]]> 49c35fc58a7eb43497704a91d889b597 ARMY PETE replied to the discussion Phase 3 Trial Shows Ofev Reduces Lung Function Decline In Patients With Fibrotic Lung Diseases in the forum Flash Briefings & Podcasts https://pulmonaryfibrosisnews.com/forums/forums/topic/phase-3-trial-shows-ofev-reduces-lung-function-decline-in-patients-with-fibrotic-lung-diseases/#post-22344 Mon, 30 Dec 2019 16:08:32 -0600 Reply to Phase 3 Trial Shows Ofev Reduces Lung Function Decline In Patients With Fibrotic Lung Diseases

Amen , Jillt

]]> 08d328448ab9acd4d6ec61652f9c4300 ARMY PETE posted an update: @hfink2007 hi hans thanks for your message.believe me , […] https://pulmonaryfibrosisnews.com/forums/activity/p/16851/ Sun, 29 Dec 2019 18:18:11 -0600 @hfink2007
hi hans
thanks for your message.believe me , i used to be a lot more negative.just ask charlene , lol. now i am just resigned to living my life with the crap that comes with it.i tryed ofev and it gave me to many side effects .and no none of the pills that countered the effect helped enough. i decided to stop.i rather enjoy what time… Read more

]]> 2 d7d59a600b0edebe029c693a51e690b4 ARMY PETE posted an update: @charlene-marshall thank you charlene.makes sense.i […] https://pulmonaryfibrosisnews.com/forums/activity/p/16776/ Sat, 21 Dec 2019 15:28:59 -0600 @charlene-marshall
thank you charlene.makes sense.i dropped 6 pouds + in the last month and yes i do eat a lot less.
take care

]]> 0 4c8d9c0a6234f9ad48ff9197fa515103 ARMY PETE posted an update: @charlene-marshall hi charlene.just a note wishing you […] https://pulmonaryfibrosisnews.com/forums/activity/p/16773/ Sat, 21 Dec 2019 15:00:15 -0600 @charlene-marshall
hi charlene.just a note wishing you a merry christmas and a happy new year .
peter
oh , i forgot. is weight loss part of ipf?

]]> 1 19a5d2d413e459385d5d093fbb41b3f7 ARMY PETE posted an update: @tschnatz This is not the time to discuss me and my IPF […] https://pulmonaryfibrosisnews.com/forums/activity/p/16753/ Thu, 19 Dec 2019 19:31:26 -0600 @tschnatz This is not the time to discuss me and my IPF but reading toms profile reminds me about my own fragility.I am not on a lot but if you feel like talking, I am a good listener ,I think.
peter

]]> 0 bf6a2b9cc08968fd82c810c6cd416c17 ARMY PETE posted an update: @tschnatz although I never spoke to tom ,I can […] https://pulmonaryfibrosisnews.com/forums/activity/p/16752/ Thu, 19 Dec 2019 19:21:24 -0600 @tschnatz although I never spoke to tom ,I can only imagine the loss you experience .It is even more painful that he couldn’t be here a little longer and have this holiday with you.
I hope that you will have family and friends around you during this stressful time
regards
Peter

]]> 0 cdaabfb67535fe3ced5a8f1819489039 ARMY PETE posted an update: @charlene-marshall hi Charlene.thanks for your […] https://pulmonaryfibrosisnews.com/forums/activity/p/16583/ Mon, 09 Dec 2019 17:58:37 -0600 @charlene-marshall
hi Charlene.thanks for your kind words.same holiday wishes for you and yours.
peter

]]> 0 7fd0527159805d8edfc1a44481d562fe ARMY PETE posted an update: @charlene-marshall hi Charlene I am doing ok for the […] https://pulmonaryfibrosisnews.com/forums/activity/p/16554/ Thu, 05 Dec 2019 16:24:31 -0600 @charlene-marshall
hi Charlene
I am doing ok for the most part. seems the hardest part is switching from the vertical to the horizontal positionand vsa versa.lots of coughing , choking etc..ttyl.
peter

]]> 1 78a718fbd7d1379b5ef377759af5ecb6 ARMY PETE posted an update: @charlene-marshall hi there thanks for your reply […] https://pulmonaryfibrosisnews.com/forums/activity/p/16466/ Fri, 29 Nov 2019 20:32:18 -0600 @charlene-marshall
hi there thanks for your reply regarding ofev and sharing the news from your seminar.hope all is well.
peter

]]> 1 0be2844f1d9f75933850193f01bd7b51 ARMY PETE and Kristin are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/16395/ Tue, 26 Nov 2019 19:40:46 -0600 0 b0f9200f53fc0a245b1f1128c13ee856 ARMY PETE replied to the discussion Phase 3 Trial Shows Ofev Reduces Lung Function Decline In Patients With Fibrotic Lung Diseases in the forum Flash Briefings & Podcasts https://pulmonaryfibrosisnews.com/forums/forums/topic/phase-3-trial-shows-ofev-reduces-lung-function-decline-in-patients-with-fibrotic-lung-diseases/#post-22079 Tue, 26 Nov 2019 19:13:23 -0600 Reply to Phase 3 Trial Shows Ofev Reduces Lung Function Decline In Patients With Fibrotic Lung Diseases

hello,  my name is pete.i was on ofev for about 9 weeks and finaly gave up .I was definatly in that 66% .i.e. living in the bathroom.ive been told by many that espriet is not much different .what is lacking in all the studies and trials is the out come with the meds.no one seems to be able to put it intp lay mans terms.I.e. if I die in 4… Read more

]]> e3d8359c03a3b0b4075d747661024275 ARMY PETE replied to the discussion Aloha from Hawaii in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/aloha-from-hawaii/#post-21510 Thu, 03 Oct 2019 14:33:05 -0500 Reply to Aloha from Hawaii

hey charlene

I am so happy for you. you go girl. now stay of the computer and have fun .lol.

“see you” when you get back.

army pete

]]> e968e259065bcca73ec4c3045c222235 ARMY PETE posted an update: thanks for your message.i will do my best.the "blow […] https://pulmonaryfibrosisnews.com/forums/activity/p/15240/ Tue, 17 Sep 2019 14:54:58 -0500 thanks for your message.i will do my best.the “blow test “lady is worse the a drill sergeant

]]> 1 26ec055be38a5f0e619b7c0de5c35a26 ARMY PETE posted an update: @mark-koziol hey mark , i posted a reply to you on […] https://pulmonaryfibrosisnews.com/forums/activity/p/15231/ Mon, 16 Sep 2019 15:00:49 -0500 @mark-koziol hey mark ,
i posted a reply to you on the Spain and other county s site .don’t know wy i was there .lol
peter

]]> 0 ab884ee1614062eb77aaaac3736fb24b ARMY PETE posted an update: @mark-koziol hey mark. seems like i am using […] https://pulmonaryfibrosisnews.com/forums/activity/p/15225/ Sun, 15 Sep 2019 22:38:24 -0500 @mark-koziol
hey mark. seems like i am using my concentrator more then before and that happend in the last few weeks.its ok after sitting a while but as soon i do something , even light stuff, it drops down to the low 80s or less.but i recover quickly.cough more ,sometimes dry,sometimes with mucus.next appt. is in october .dont know how i… Read more

]]> 1 48d94853733571149cc95501b8629319 ARMY PETE posted an update: @stulef I agree with your suggestion https://pulmonaryfibrosisnews.com/forums/activity/p/15116/ Tue, 10 Sep 2019 15:39:46 -0500 @stulef I agree with your suggestion

]]> 0 620db2e12003c6aed1aa6bb4090f1b63 ARMY PETE posted an update: @ohiocher slowly falling apart LOL https://pulmonaryfibrosisnews.com/forums/activity/p/15115/ Tue, 10 Sep 2019 15:35:37 -0500 @ohiocher slowly falling apart LOL

]]> 0 9a9abc1ce2b60927e2ff978956de23f9 ARMY PETE posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/15106/#acomment-15114 Tue, 10 Sep 2019 15:34:25 -0500 have a great time.finally .I will be” suffering “with you here in the sunshine state.lol

In reply to - Charlene posted an update Hello friends! I officially leave for Hawaii in two weeks tomorrow and trying to figure out how I can bring all of you “along” with me – whether it be through video’s, photos, […] ]]> 7ccaa4c3f090c5dc8ee3494ed5333e83 ARMY PETE posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/1154/#acomment-15113 Tue, 10 Sep 2019 15:30:38 -0500 I am on oxygen.a six minute walk would drop me down to 80 0r less..thats with out ox. I was told to hook up when I go below 88.thats seems to be happening a lot.i have a portable tank but have not used it outside YET.hope this helps?your dr.is wise.quality is the most important thing for me.tried ofev but it took my quality down to… Read more

In reply to - Jim McCool became a registered member ]]> 7d58ed3059aed88ae82f200af8860cf9 ARMY PETE posted an update: @ohiocher hi . I was diagnosed about the same time.gave […] https://pulmonaryfibrosisnews.com/forums/activity/p/15112/ Tue, 10 Sep 2019 15:20:50 -0500 @ohiocher hi .
I was diagnosed about the same time.gave up on ofev with too many bath room visits and close calls .I find myself on oxygen now .every thing got worse in the last 2 month……..are you on oxygen ?
peter

]]> 0 397163b521d59951eb7a298ae30d80ed ARMY PETE replied to the discussion How do you feel? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/how-do-you-feel/#post-21163 Wed, 04 Sep 2019 15:23:55 -0500 Reply to How do you feel?

darn it ,cant see what I am typing

nagging

]]> b8ab0179d0fc0e1c875964aa3c7fa8b8 ARMY PETE replied to the discussion How do you feel? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/how-do-you-feel/#post-21162 Wed, 04 Sep 2019 15:22:57 -0500 Reply to How do you feel?

hey Charlene,

you are never nqagging.lol

peter

]]> 19bf6b8e7b8c1059489868d9f5095fee ARMY PETE replied to the discussion How do you feel? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/how-do-you-feel/#post-21136 Tue, 03 Sep 2019 20:13:22 -0500 Reply to How do you feel?

thank you for caring.

the air in the house is ok as far as i knowissues with coughing .we keep the ac on.showering causes even with the exaust fan on.were in fla.air is probebly better the in a big city.for what its worth, i just went outside to unplug my charger and put it into my shed.my oxy.went to 76.my wife is giving me hell for not… Read more

]]> 6e9820319a12bdd36c2a674c3a659056 ARMY PETE replied to the discussion How do you feel? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/how-do-you-feel/#post-21115 Tue, 03 Sep 2019 16:05:41 -0500 Reply to How do you feel?

hi to every one

I have not been on for a while .I can attest to the unfortunate fact that I have the same experience.what concerns me is the speed of the symptoms progression.my next appt.is in October.it almost feels like a waste of time to go only to hear what I already know.with in the last 3 month or so I have been on oxygen , for… Read more

]]> 4b7882f1819058b8f66b364e69e0cc41 ARMY PETE joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/13736/ Tue, 16 Jul 2019 15:52:45 -0500 0 a4de3093304c13a3fe25d2ff24b86551 ARMY PETE updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/13669/ Thu, 11 Jul 2019 16:43:33 -0500 0 a46ad87318e2d28102458798abf17484 ARMY PETE and Jan Riche are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/12963/ Mon, 10 Jun 2019 19:37:56 -0500 0 dc065d36fdc39a9d953681f88be10d74 ARMY PETE posted an update: seems like i all ways mess up when and where to […] https://pulmonaryfibrosisnews.com/forums/activity/p/12932/ Sun, 09 Jun 2019 16:20:18 -0500 seems like i all ways mess up when and where to post comments and or updates or messages..i am much more comfortable wth direct messaging like e mail.maybe i am getting to old/confused to navigate here .i never know who reads or gets my comments .lol. just gone stay on the sidelines for a while .

]]> 1 a73b05e38d4f8ee3df08e56fc40a4548 ARMY PETE posted an update: @kmoel327 i am allways curious as to how difficult it […] https://pulmonaryfibrosisnews.com/forums/activity/p/12930/ Sun, 09 Jun 2019 15:49:33 -0500 @kmoel327 i am allways curious as to how difficult it is to survive past that magical 2-3 year prediction of survivebility.i was diagnosed 3/2017

]]> 1 89a9cbacaa29f55307ed5490a9c2a863 ARMY PETE posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/11775/#acomment-12262 Mon, 20 May 2019 18:39:53 -0500 hello again.i am wondering about your doctor.stay away from kids?????what if you had kids ,does he want to rid of them? i ave a cat and i am ok i .get a litle out of breath when i clean her litter box.i also cough less at night.takes a few minutes to adjust to laying down ,cough more then for a fea min.
good luck
peter

In reply to - Jeannie became a registered member ]]> 70c452e5002b57e22543277963f40ad1 ARMY PETE replied to the discussion A condition with no clear diagnostic criteria - Idiopathic in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/a-condition-with-no-clear-diagnostic-criteria-idiopathic/#post-19102 Sun, 12 May 2019 16:27:55 -0500 Reply to A condition with no clear diagnostic criteria - Idiopathic

hi charlene , we “spoke before”so far my diagnosis is ipf.honey coam slowly progressing.ofev made me sick after 7 weeks i quit it.scared to try the other drug.dont want to go through living in bathroom again.as of late , i am out of breath  making the bed or taking out the garbage ,even showering is difficult.i have ptsd .i am a vietnam vet… Read more

]]> a770d411b4be385daaf9b7538baaead4 ARMY PETE posted an update: @johnl i had been on ofev for 7 weeks or so and i […] https://pulmonaryfibrosisnews.com/forums/activity/p/11931/ Sun, 05 May 2019 16:48:30 -0500 @johnl i had been on ofev for 7 weeks or so and i started living in the bathroom.going shopping was frightfull……..i quit.
how ever , my dr. told me and this forum platform.agrees i think, that no two patients are alike and some people tolerate either of the two major”pills”. you just gone have to try.
peter in palmetto

]]> 1 a4abc4527728e7d714a38fc67b63aec0 ARMY PETE posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/10582/#acomment-11923 Sat, 04 May 2019 14:57:00 -0500 I am 71 and I am not taking a risk with concidering a transfer.way too many requirements .besides , I would rather have a younger person get a lung.also ihate waiting and die before ,if at all,they have lung available.but I am content and LIVE for now.im not a pessimist ,just a realist.its all good (sort 0f lol)

In reply to - Crystal M became a registered member ]]> 3c45ceb45e28778d738b6506dc826e7d ARMY PETE and Marianne are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/11902/ Fri, 03 May 2019 18:30:20 -0500 0 85a687f0aa0d7156aff31e4796efb7e3 ARMY PETE posted an update: @betty-edwards my doc. had me on ofev and i quit after […] https://pulmonaryfibrosisnews.com/forums/activity/p/11388/ Tue, 16 Apr 2019 23:53:03 -0500 @betty-edwards my doc. had me on ofev and i quit after 2 month or so.we had a good discussion last week and i came away with the fact that those two meds. work for some and not for others.if you can stomache either its worth a try .i for one gone do with out.most people will have some side effects ..betty , you are a lucky lady .its just not… Read more

]]> 0 da22f90c807f0320b5dfad828ef06b67 ARMY PETE posted an update: @lowe i kind of envy you for the weight loss.i […] https://pulmonaryfibrosisnews.com/forums/activity/p/11278/ Mon, 15 Apr 2019 13:07:49 -0500 @lowe i kind of envy you for the weight loss.i stopped smoking and didnt loose a pound sinse

]]> 0 330cca5ca75bb3075ae25d6ebe1a65ae ARMY PETE posted an update: @lowe hello,just read about your (i think?) cbd […] https://pulmonaryfibrosisnews.com/forums/activity/p/11277/ Mon, 15 Apr 2019 13:00:21 -0500 @lowe hello,just read about your (i think?) cbd use.been thinking about it.bought some for my wife but she wants something stronger……..
i got the water soluteble.

]]> 0 31e8ee632f46bca2c8c9af1afc0d38d5 ARMY PETE posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/10908/#acomment-10948 Thu, 04 Apr 2019 18:14:36 -0500 hey Charlene
You make a great Diplomat.You should be an Ambassador.lol
thanks
Peter
peter

In reply to - ARMY PETE posted an update I am curious.I was diagnosed about 2017 ,closer to 2018.had a triple bypass last may and lost track of time……was put on ofev and i stopped after about 2 month dues to […] ]]> 5fa7b49e357446a07539abeca4b27afd ARMY PETE posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/10908/#acomment-10923 Wed, 03 Apr 2019 22:36:06 -0500 hi charlene,I did try ofev for 7 weeks and it made me sick.Maybe these forums are just not for me.I am retired army and have a backgreound in lawenforcement.I cant deal with maybe or could ……I want facts and or proof.I am not a guineapig.We are giving a lot of false hopes .Maybe thats human nature but Nothing here is a sure shot.So , I… Read more

In reply to - ARMY PETE posted an update I am curious.I was diagnosed about 2017 ,closer to 2018.had a triple bypass last may and lost track of time……was put on ofev and i stopped after about 2 month dues to […] ]]> 2a083da157d04db530505531cba65e9d ARMY PETE posted an update: I am curious.I was diagnosed about 2017 ,closer to […] https://pulmonaryfibrosisnews.com/forums/activity/p/10908/ Wed, 03 Apr 2019 17:04:02 -0500 I am curious.I was diagnosed about 2017 ,closer to 2018.had a triple bypass last may and lost track of time……was put on ofev and i stopped after about 2 month dues to side affects.(bathroom,cramps ,feeling like crap.i read about members telling me they are doing well on either of the 2 major meds.By what measure are they doing well? What… Read more

]]> 4 50b18f09d0ceea6fd2a93492476215b1 ARMY PETE replied to the discussion Taking ofev a year! in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/taking-ofev-a-year/#post-18094 Tue, 02 Apr 2019 18:20:34 -0500 Reply to Taking ofev a year!

You are very kind.thank you.I am on prozac , trazedone and blood pressure drugs and a few more for what ailes me .The ofev just buriied me .lol

]]> 2cbdae576eb4c09a0117d893a5a698b2 ARMY PETE replied to the discussion What You Enjoy... in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/what-you-enjoy/#post-18093 Tue, 02 Apr 2019 18:16:19 -0500 Reply to What You Enjoy...

WE ARE IN FLORIDA . MINUTES FROM THE BAY AND A FEW LONGER MINUTES TO THE GULF.DONT WORRY .WHEN YOU GO TO HAWAII YOU SEE WHAT I MEAN .LOL

]]> 4fb451bd2b8b610dc503f6c3ce56e419 ARMY PETE replied to the discussion Taking ofev a year! in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/taking-ofev-a-year/#post-18083 Tue, 02 Apr 2019 17:59:56 -0500 Reply to Taking ofev a year!

Being somewhat of a cynic,I see that the good germans ,and I am one , raked in over 20 billion dolars sinse 2017.Much of there studys are trials and the results are measured by the amounts of air you can exhale /inhale.I do that test every few month.It  does not show ay “real life” qualiy of life changes .At least in my case , living with ofev… Read more

]]> a5639c58fe652561b56d64a2593806c5 ARMY PETE replied to the discussion What You Enjoy... in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/what-you-enjoy/#post-18081 Tue, 02 Apr 2019 17:59:47 -0500 Reply to What You Enjoy...

I enjoy eating out at a waterfront restaurant with my wife.

Having coffee or wine on the patio

Watching movies on Netflix , amazon , hulu etc.alone.She does not like tv.

Driving our Cadillac

Going to my weekly Ptsd group

Do I dare say , being intimate with my wife?

]]> 9e3f50c68cadc2aa48364a9382642be6 ARMY PETE posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/10623/#acomment-10661 Wed, 27 Mar 2019 19:01:02 -0500 from what hear and have read,there is not much difference between the two meds. At this point my symptoms are manageable .I use simbicort ,which I dont think helps much.my air/pulse is mostly in the low 90s or upper 80s.it varies depending on my exertion…..I am somewhat of an odd duck. I am retired army and a nam. vet.ive been through a lot… Read more

In reply to - ARMY PETE posted an update hello everyone.i think my profile gives some info about me. I dont want to come across as a negative influence on any one but I have tried ofev for 2 month plus and I quit.at first […] ]]>