[Peter Goodwin]

K Laser US have changed their name to Summus Medical.

Apparently there were legal issues between K Laser US and K Laser Europe.

Peter

[Peter Goodwin]

Very interesting Katie.  I live in Sheffield and Dr Renshaw, listed as heading ILD research, is my consultant pulmonologist at NGH. Small world.

Yes. NGH gave me MRI and CAT scans as part of my diagnosis.

Hope your wish for a career in ILD research is successful.

Peter

[Peter Goodwin]

Just a quick update. I try to take short walks daily but last weekend I decided to start timing my walks over a specific distance. I figured this would show progress, good or bad, over time.

So, seven walks in all. Only a short distance. My time on 5 of the walks was within 10 seconds of 7 mins 30 secs. On the two other days I had my Laser therapy and took the walk when I got back – and those times were 7 mins 1 second and 6 minutes 41 seconds. A truly remarkable difference on the Laser days.

[Peter Goodwin]

Hi Charlene

Yes. I take Silicolgel which coats your digestive system with a protective coating and helps keeps it under control. I stay away from PPI’s as they have a bad press. It’s a German product. You may have to buy from Amazon in the US.

Pleased to hear you don’t suffer from GERD. That’s one thing you can do without.

Peter

 

[Peter Goodwin]

I clicked on the link for IPF and found the following:

Intensive research has been conducted to find what causes IPF. It has been found that IPF is strongly associated with gastroesophageal reflux disease (GERD), a condition where stomach acid flows back into the esophagus. It’s estimated that 90 percent of people with IPF have GERD. There are many theories about the connection of IPF with GERD and researchers are investigating whether aspiration of stomach acid is the cause of IPF or it causes the acute episodes and worsening of the lung scarring. Recent studies have found that treating people who have IPF for GERD is beneficial. 

A 2011 study found that people with IPF who used GERD medication had median survival rates about twice as long as those patients who didn’t use the medication. Also, there was less lung scarring. A small 2013 study of patients with IPF found that those taking GERD medication had a slower decline in their breathing capability and fewer acute episodes and the authors suggest that GERD is a contributing factor in IPF.

Anybody else take medication for GERD?

[Peter Goodwin]

Excellent pulmonary rehabilitation video on YouTube. Not too strenuous. Just do as much as you are able, when you like, as often as you like.  https://www.youtube.com/watch?v=nwxy9FLBMjk

[Peter Goodwin]

For those considering serrapeptase please be aware this will prevent blood clotting. However, if you’re on warfarin, clopidogrel, asprin or other blood thinners, it may not be a good idea to take serrapeptase as well. See your doctor first. You should also not take it 2 weeks before surgery.

[Peter Goodwin]

Quick update on my laser therapy, now completed 9 sessions. Before starting laser I paid for an extra lung function test, knowing I was due for my regular test in March. Pleased to say FEV1 and FVC are up 7% and 4% respectively. 02 remains 2/3% higher than when I started and fatigue is not the problem it was. Still waiting for any improvement to my  breathing.

[Peter Goodwin]

Hi Dello

When I found a local provider I eMailed  him a link to the original Laser Therapy thread so he knew what it was all about. It may also be useful to include Dr Halls own website page (  https://ipflaserstudy.com/laser-therapy/   ) where Dr Hall  explains in detail the therapy and provides other practitioners the exact protocols to work with.

I guess the therapy we require isn’t what your average chiropractor gets asked for every day – or ever, so they may require a little more information. Good luck.

 

 

[Peter Goodwin]

Hi everyone, I’m on a course of 16 Laser treatments spread over 8 weeks.

Had my third session today. O2 at rest has been hovering around 92/3 this past few months, today it’s 95 !!

Breathing not yet improved but I’ve had a stubborn cold this past 10 days which I don’t think has helped.

Thanks to Dr Hall and especially John Styles who brought his laser therapy to our attention.

[Peter Goodwin]

Hi @drandyhall

There are 9 frequencies on your web page, each lasting 25 seconds, so total time is 3 min 45 seconds. However, you also indicate a time of 4.5 mins for each quarter lung and my chiropractor believes these 2 figures aren’t compatible. He suggests there may be a one or more frequencies missing.

Could you confirm the protocol on your website is indeed correct.

Many thanks.

Regards

 

Peter

[Peter Goodwin]

Thanks @drandyhall . Only just seen this. (I find it difficult to navigate this forum, hope others haven’t missed it too).

Recently been diagnosed with PH and Bronchiectasis. Would Laser therapy be beneficial for these too?

Regards.

Peter.

 

[Peter Goodwin]

Hi Cynthia

 

RA was also the source of my PF, which was diagnosed as UIP (usual interstitial pneumonia.)

Ofev and Esbriet are only tested for use by IPF patients, so are not available to us.

For what it’s worth I have taken a course of Laser therapy, which may prove more effective over time.

[Peter Goodwin]

Hi @drandyhall,

Excellent news on your PLT’s, gives further confidence to those contemplating Laser therapy.

6 or 7 weeks ago you posted on facebook on K Lasers progress with a ‘science based’ protocol for lung diseases. Are they any nearer to establishing a consensus on what works best?

Regards

Peter

 

[Peter Goodwin]

Hi Kiran I’m in Sheffield and use an osteopath with a K laser. I’m lucky, the nearest then is 40 miles away either in Nottingham or the North West. If you google K Laser providers UK it will show a map where they all are.

My 02 sats are up a couple %, my fatigue has lifted and my walking has just started becoming a tad easier. The real aim of course is to slow or stop progression, anything else is a bonus. I’ve had 2o sessions at £40 a time, I think chiropractors are a little cheaper.

Peter

[Peter Goodwin]

Hi Catherine

First of all you’ll need a chiropractor who uses a Laser. Go to:

https://www.k-laser.com/medical-professionals/find-a-provider

Enter your town and it will show providers near you on the map. Scroll down the page and it will also give you a list.

Unfortunately most Laser providers won’t know about Laser for Pulmonary Fibrosis so you’ll have to point them to Dr Hall’s website. It’s all explained on  http://summit-chiropractic.com/ipf/

Dr Hall is very helpful and and if necessary will help you find a provider and guide them through the process as he has suggested in his post above.

Good luck with the Laser therapy, I know Dr Hall  will help find a suitable provider nearby and guide you through the process.

Peter

 

[Peter Goodwin]

Hi A Houghton (What’s the A stand for?)

Hope I can help.

Where abouts are you located?

 

Peter

[Peter Goodwin]

Hi Steve

Thanks. I always understood the number of joules administered represented  the ‘dose per session’. So at 11,000 that’s twice what I receive as recommended by Dr Halls protocol. Wish I understood a little more. I have another session tomorrow so I’ll ask my chiropractor.

[Peter Goodwin]

Hi Steve

Good to hear the Laser is working well for you.

Dr Halls protocol on his website suggests 10 watts,  5400 joules per dose, 5 minutes front and 5 minutes back.

You mention your Doc’s Laser uses 12 watts and a little over 11000 joules –  and you are treated 7 1/2 minutes back and 7 1/2 front. Does that mean you are receiving a total dose of 11,000 joules?

Thanks. Peter.

[Peter Goodwin]

Hi George

According to Dr Hall the current protocol is:

10 watts, continuous wave. 5 minutes on front of chest, 5 minutes back of chest both with an intercostal application. 3x per week for 4 weeks, then twice per week for 4 weeks then once per week thereafter.

Good luck.

[Peter Goodwin]

Thanks Steve.  A little complicated as I’m also on clopidogrel but serrapetase does appear to have many benefits.

I’ll ask my Doc if I can substitute the clopidogrel with serrapetase. Not sure I’ll ever be brave enough to take 500,000 su’s though.

[Peter Goodwin]

Hi Leontis and Steve

When I spoke to my osteopath previously about this he suggested there was little difference between Dr Hall’s and K laser’s protocols other than the use of pulsing. He appeared to suggest that Dr Hall’s K Laser may not have the pulsing facility. He offered this to me but Dr Hall appears to have done OK without it so I didn’t bother.

I Emailed him for the K Laser protocol and his reply was:

“The guidance that K Laser has given is to use acute thoracic setting once anteriorly and once posteriorly, this gives a total of about 4800 – 5100 joules at an average power of 10 watt using the intense super pulse (ISP) feature of the K Laser.”

I guess it’s interesting to know K laser’s thinking but I doubt whether one protocol is going to work fantastically better than any other version.

Peter

 

[Peter Goodwin]

Hi Charlene

No, I’m over in England. I searched the K Laser provider site for the UK and found an osteopath a couple of miles down the road, the next nearest was 50 miles away so I’m a tad fortunate. As luck would have it he knew a mutual acquaintance of Dr Hall’s and was able to confirm what was required.

I went for my fourth session today. My osteopath tells me K Laser have now issued their own protocols for treatment of Pulmonary Fibrosis patients, so hopefully that should help when contacting K Laser providers.

[Peter Goodwin]

Hi David, You could try http://klaseruk.co.uk/patients/#find

There looks to be a provider 30 miles or so from Exeter in South Moulton. Good luck.

I believe this has already been mentioned but, anyone in the US looking for a K laser provider just type your location in at:

https://www.k-laser.com/medical-professionals/find-a-provider