Pattye
Forum Replies Created
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I’ve had GERD for years. After being diagnosed 2 years ago with ipf, I had a terrible time breathing if I bent over. My Gastro Dr. Didn’t think my hernia was very large & not bothering my lungs & said my lungs couldn’t handle surgery. I got a referral to UT Dell Medical in Austin & they wanted to do surgery immediately! I had it done in January & the quality of my life has greatly improved. No more tightness in my chest, my crackle & wheezing has stopped & I can bend over! I only spent one night in the hospital. The diet was the hardest part of the surgery & recovery!
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I have learned to advocate for myself. Most office staff just don’t have the urgency that I feel they should have. It’s so aggravating! We do need to learn patience because nothing about this is quick. Blessings to you as you learn to navigate this journey.
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Talk with your doctor. My doctor has me adjust my oxygen flow as needed. I always need to turn it up to shower, vacuum, or any bending down activities. I also require more if the humidity is high & I’m outside.
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Charlene, I’m right there with you. I’m newly diagnosed & it’s definitely a roller coaster ride. I’m mad, sad, irritated and just want & have thrown many temper tantrums. This is not fun! I just want it to go away……. I know I can & will enjoy life – just a different life. I remind myself daily that different doesn’t mean bad or good just different! Hugs!
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I have to watch the temps and the humidity levels before I try to walk outside. I do a breathing treatment or inhaler before going out; seems to help! Thinking I need to walk in A/C! Pace yourself; slow is ok; breathe!
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Congratulations! I start Ofev anyday now; hoping to wean down on my oxygen use as well as many of us do! So wonderful to hear your story! Thank you!
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Gayle, OMG! I keep saying I need a dog! Maybe…….Good for you!