Randi
Forum Replies Created
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Yes. I’ve totally lost my voice. I finally saw laryngologist #2 today who believes it may be a fungal infection as a result of steroids (Prednisone and an inhaler) and several back to back bouts of pneumonia and upper respiratory infections with endless coughing over the last six months. He gave me an antifungal and I have to come back in two weeks when he will check and also biopsy my vocal cords.
Huge sigh…
Hoping you get some relief, Charlene!
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I spend endless hours doing watercolor paintings. I generally use reference photos I’ve taken on various trips over the years or simply from walks in my neighborhood. It gives me the joy of both memories and being creative. I also do clay sculpting, which is lots of fun. And from time to time, I pull out my violin which I love, but can play only for short times.
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I’ve had an Inogen One G3 for about four years. You begin to get a ‘feel’ for how much time you have, although it depends on which setting you are using. If I click up or down on the setting button, it will usually show me how much time I have left (assuming exactly the same setting, of course.) Keep in mind, though, that the info you receive is not always reliable. I’m not sure that there’s a way to predict in advance how much time the battery will last. I always have a charger in the car, and if I feel I will be out for a long time, I’ll carry a second battery, although it adds weight, of course.
Enjoy your newfound freedom! -
Ever since I was diagnosed, I decided to celebrate the heck out of every milestone, including birthdays! May we reach many more positive milestones in our lives!
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Hi Charlene!
What a great idea! I have NSIP, more fibrotic than cellular, and my motto is not to grieve over what I can’t do, but to celebrate what I can. NSIP has provided me with an opportunity to explore various creative avenues including sculpting and watercolor painting. I would love to post pictures, but I can only see a possibility to post videos. Wishing us all the ability to live our best lives possible!
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Hello Charlene,
My name is Randi. I am 68 years old, and was diagnosed with NSIP about a year and a half ago, and I have been attending pulmonary rehab sessions twice a week since then.
- Without a doubt, it has been instrumental in reducing dyspnea, increasing exercise performance, and improving health-related quality of life (HRQL).
- It’s hard to say which exercises were difficult and which were easy. When I began, I could do only a few minutes on the treadmill. Now I can do 20 minutes on the elliptical machine and another ten on the treadmill, in addition to breathing exercises, strength and resistance exercises, and stretching.
I had severe COVID and was hospitalized for over a week in January 2021 (diagnosed two days before my vaccine appointment). When I returned to the rehab program, nearly two months later, I obviously had to work to recoup cardiopulmonary endurance, but I am sure that the work I did before the COVID helped me to overcome it, and I have since surpassed where I was before. - I find the breathing exercises enable me to expectorate much more successfully.
- I would recommend a pulmonary rehab program to anyone with a chronic lung disease. In fact, I think with the exception of my lungs, I’m probably in better shape now than I have been in years.
Thank you for sharing the article.
Best,
Randi