Renee
Forum Replies Created
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Yes, l would be interested in joining you
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I just made a trip to the Grand Canyon. I was off of my Ofev for 10 days. According to my Doctor it was not a big deal to get off of it because l have no other underlying medical problems. She said if l were on any meds dealing with an infection, that would be a different story. Overall I am healthy, except for the PF. I am not downplaying this terrible disease but l am not going to let it (and the Ofev) rule what time l have left. The GC trip was on my bucket list and l was determined to fulfill that wish early enough to enjoy doing it.
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Exactly Richard, it does matter. Our children and grandchildren are in danger of having this terrible disease. I don’t want my granddaughter and her offspring to be worried about it. My son has passed so that leaves my worries about our little girl and her future.
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My two brothers have died from IPF. I was diagnosed 2 years ago and my doctor keeps telling me that it isn’t a hereditary disease. It appears to me if all of these reporting about different family members testing positive for IPF, then is would be familiar.
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Hi Liz,
- I am on Breo once a day but honestly can’t say if it’s helpful. I don’t have asthma so really not sure why I am on it, but doc wants me to stay with it.
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Hi Augusta,
I coughed for a year before finally getting the diagnosis of IPF. I started on Ofev in January of this year and my coughing has almost disappeared. I am convinced that the Ofev has helped. The side effects can be bad at times, but right now and l will take that over the constant hacking anyday?. Hopefully you can get some relief. Take
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I too was just diagnosed with IPF. I have 2 siblings that had a definite diagnosis of IPF. My doctor says its nit genetic, but still makes me wonder about 3 of 6 developing this horrible disease. They both only lived less than 3 years after the diagnosis.