Kay Robertson

[Kay Robertson]

Hi Paul,

I have been on Cellcept and Ofev for last 4 months.  I am a 76 y/o widow and also denied Ofev assistance based on income.  I am on Aetna Medicare Advantage and as I am sure you know the prescription plans are reset yearly every January. My copay is 1st month $4,127,57, 2nd month $3,429.38 and then next 10 months $625.9 per month.  If your copay stayed the same it is a much better plan than mine so I will have to check it out this year.

Thank you so much,

Kay

 

[Kay Robertson]

Hi Friends,

I started Cellcept  3000mg in August and Ofev 150mg 2x daily in September.  I also take Omeprazole 40mg 2x a day for acid reflux. I have had no diarrhea must be odd man out because I have gas, bloating and constipation. I was constipated for 3 days and was told to take Colace.  Finally went on 4th day (with severe cramping) and was told to discontinue Colace.  However, since that day, I am now on my 4th day again being constipated and started Colace again.

Has anyone had constipation and what helped?

Thanks

Kay

[Kay Robertson]

Hi Sandy,

I have Interstitial Lung Disease and Scleroderma and take Cellcept and Ofev.  My doctor prescribed 4mg Ondansetron ODT for when I get nauseous.  You dissolve a small pill on your tongue and it gets rid of the nausea quite fast.  Hope this helps.

Kay

[Kay Robertson]

Hi Roseanne,

Thanks for your advice.  Cellcept (Mycophenolate Mofetil) is used to treat autoimmune diseases and reduce inflammation.  I have also been diagnosed with Scleroderma which may or may not be the cause of my IPF.  Colace is what the Special Pharmacy pharmacist recommended for the constipation. But it really isn’t working.

Hope you make out better with the side effects.

Take care,

Kay

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